欧洲遗传性肿瘤风险综合征参考网络（ERN GENTURIS）：对患者、家庭和医疗服务提供者的益处。
The European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS): benefits for patients, families, and health care providers.
作者信息
Engels Manon, Urbanczyk Katarzyna, Hölzenspies Jurriaan, Röhl Claas, Geverink Nicoline, Hoogerbrugge Nicoline
机构信息
Department of Human Genetics, Radboud university medical center, Nijmegen, The Netherlands.
NF Kinder, Vienna, Austria.
出版信息
Fam Cancer. 2025 Mar 30;24(2):33. doi: 10.1007/s10689-025-00457-9.
The European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS) established in 2017 and connecting more than 50 European expert centres improves access to diagnosis, treatment, and the provision of high-quality healthcare for patients with rare genetic tumour risk syndromes (hereditary cancer), no matter where they live in Europe.
欧洲遗传性肿瘤风险综合征参考网络（ERN GENTURIS）于2017年成立，连接了50多个欧洲专家中心，改善了对患有罕见遗传性肿瘤风险综合征（遗传性癌症）患者的诊断、治疗途径，并为他们提供高质量医疗服务，无论这些患者在欧洲何处居住。
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