Gonçalves Barbara, Lusher Joanne, Cund Audrey, Sime Caroline, Harkess-Murphy Eileen
University of the West of Scotland, UK.
Provost's Group, Regent's University London, UK.
Int J Integr Care. 2025 Mar 28;25(1):16. doi: 10.5334/ijic.7748. eCollection 2025 Jan-Mar.
People with advanced chronic obstructive pulmonary disease (COPD) are well recognised to experience high levels of unaddressed physical and psychosocial symptom burden. Palliative care provides viable support that strives to relieve the sufferings and optimise quality of life for patients. This study aimed to identify factors that contribute to satisfaction and well-being of people with advanced COPD while attending services which offer palliative care approaches.
A descriptive exploratory qualitative study using semi-structured interviews was conducted. Nineteen participants (67 ± 9 years) were recruited through Breathe Easy clinic (n = 13), and day hospice (n = 6) in the United Kingdom.
Both types of services were noted for bringing substantial contributions to patients' lives. Healthcare professionals' empathy and skilled communication were particularly important, with participants adjusting and accepting their limitations more easily when they understood their disease. Early introduction to services with palliative care approaches, along with referrals to support groups and education, helped normalise their experiences and improve symptom management.
Providing psychological and educational interventions can lead to improvements in social aspects of patients' lives or the development of self-management techniques to cope with the disease both physically and mentally. Early palliative care involvement is essential in this population.
晚期慢性阻塞性肺疾病(COPD)患者存在高水平的未得到解决的身体和心理社会症状负担,这已得到广泛认可。姑息治疗提供了切实可行的支持,致力于减轻患者痛苦并优化其生活质量。本研究旨在确定在接受提供姑息治疗方法的服务时,对晚期COPD患者的满意度和幸福感有贡献的因素。
采用半结构式访谈进行描述性探索性定性研究。通过英国的“轻松呼吸”诊所(n = 13)和日间临终关怀机构(n = 6)招募了19名参与者(67±9岁)。
两种类型的服务都为患者的生活做出了重大贡献。医疗保健专业人员的同理心和熟练沟通尤为重要,当参与者了解自己的疾病时,他们更容易调整并接受自身局限性。早期引入姑息治疗方法的服务,以及转介至支持小组和教育,有助于使他们的经历正常化并改善症状管理。
提供心理和教育干预可改善患者生活的社会方面,或发展自我管理技巧以在身心两方面应对疾病。早期介入姑息治疗对这一人群至关重要。