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针对多发性硬化症患者的职业康复干预关键成果:一项名义小组技术研究

Key Outcomes for a Vocational Rehabilitation Intervention for People With Multiple Sclerosis: A Nominal Group Technique Study.

作者信息

De Dios Perez Blanca, Senior Caolan, das Nair Roshan, Kendrick Denise, Evangelou Nikos, Newsome Ian, Radford Kate

机构信息

Centre for Rehabilitation and Ageing Research, Queens Medical Centre, University of Nottingham, Nottingham, UK.

NIHR Nottingham Biomedical Research Centre, Nottingham, UK.

出版信息

Health Expect. 2025 Apr;28(2):e70265. doi: 10.1111/hex.70265.

Abstract

BACKGROUND

Job retention vocational rehabilitation (VR) interventions for people with multiple sclerosis (MS) can positively impact a person's independence and directly influence health and employment outcomes. However, evaluating the effectiveness of VR interventions can be challenging due to their highly individualised nature and the diverse range of potential health and employment outcomes that may be impacted.

AIM

To identify the most important outcomes of a job retention VR intervention from the perspective of people with MS.

DESIGN

A nominal group technique (NGT) was conducted with people with MS using Microsoft Teams and Microsoft Forms. The study involved completing a demographic questionnaire, being introduced to VR, silently generating ideas, round-robin discussions, ranking outcomes and reaching a consensus. NGT data were analysed using thematic analysis.

RESULTS

We conducted two NGTs involving 10 participants with MS. Nine outcomes were identified and ranked based on priority, relating to four themes: (1) Employer support and collaboration; (2) Empowerment; (3) Symptom management and progression and (4) Professional well-being and performance.

CONCLUSION

Improvements in employer support and symptom management were seen as key outcomes for VR interventions that could eventually lead to enhanced work performance and job retention for people with MS. Future research should explore how feasible it is to collect these outcomes to ascertain the impact of VR on employment over time. Due to the complexity of the outcomes identified, there may be a need to develop new outcome measures with improved validity and sensitivity to these interventions.

PATIENT OR PUBLIC CONTRIBUTION

This study is part of a larger project co-developed with three people MS. A lead patient and public involvement representative and lay co-author reviewed the study topic guide to improve clarity and study focus and supported the group discussions and data analysis with input from the lead researcher.

摘要

背景

针对多发性硬化症(MS)患者的工作保留职业康复(VR)干预措施可对患者的独立性产生积极影响,并直接影响健康和就业结果。然而,由于VR干预措施具有高度个性化的性质以及可能受到影响的潜在健康和就业结果范围广泛,评估其有效性可能具有挑战性。

目的

从MS患者的角度确定工作保留VR干预措施的最重要结果。

设计

使用Microsoft Teams和Microsoft Forms对MS患者进行了名义小组技术(NGT)。该研究包括完成一份人口统计学调查问卷,介绍VR,静默产生想法,循环讨论,对结果进行排名并达成共识。使用主题分析对NGT数据进行分析。

结果

我们进行了两次NGT,涉及10名MS患者。确定了九个结果并根据优先级进行了排名,涉及四个主题:(1)雇主支持与协作;(2)赋权;(3)症状管理与进展;(4)职业幸福感与表现。

结论

雇主支持和症状管理的改善被视为VR干预措施的关键结果,最终可能导致MS患者的工作表现提高和工作保留。未来的研究应探讨收集这些结果以确定VR对就业随时间的影响的可行性。由于所确定结果的复杂性,可能需要开发新的结果测量方法,以提高对这些干预措施的有效性和敏感性。

患者或公众贡献

本研究是与三名MS患者共同开发的一个更大项目的一部分。一名主要患者和公众参与代表以及外行共同作者审查了研究主题指南,以提高清晰度和研究重点,并在首席研究员的投入下支持小组讨论和数据分析。

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Factors associated with self-reported work ability among people with multiple sclerosis in Sweden.瑞典多发性硬化症患者自我报告的工作能力相关因素。
Mult Scler J Exp Transl Clin. 2025 Jan 7;11(1):20552173241304324. doi: 10.1177/20552173241304324. eCollection 2025 Jan-Mar.

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