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为患有多发性硬化症的求职者试行一个基于电子邮件的资源包。

Piloting an email-based resource package for job seekers with multiple sclerosis.

作者信息

Dorstyn Diana, Roberts Rachel, Murphy Gregory, Kneebone Ian, Migliorini Christine, Craig Ashley, Hutchinson Claire, Field Deborah

机构信息

a School of Psychology, Faculty of Health Sciences , University of Adelaide , South Australia , Australia.

b School of Public Health , LaTrobe University , Victoria , Australia.

出版信息

Disabil Rehabil. 2017 May;39(9):867-873. doi: 10.3109/09638288.2016.1161847. Epub 2016 Apr 10.

Abstract

PURPOSE

Media-based rehabilitation provides a powerful opportunity to examine vocational behaviors in the disability sector. However, this research is preliminary at best. This paper reports pilot data.

METHOD

Eighteen adults with multiple sclerosis (MS) accessed an email-delivered, resource-based package, Work and MS. Pre- and post-access vocational self-efficacy and identity (Job-Procurement Self Efficacy Scale, My Vocational Situation Scale- primary outcomes), life orientation and depressed mood (Life Orientation Test - revised and Patient Health Questionnaire-9 - secondary outcomes) were assessed. Pre- and post-change scores were examined with Wilcoxon signed ranks tests and Hedges g effect sizes with associated 95% confidence intervals. Reliable change analyses were additionally calculated to determine the clinical significance of individual change scores.

RESULTS

Significant and positive effects were reported for vocational self-efficacy, identity, and optimism. Reliable change scores in one or more of these key outcomes were reported by 30% of the sample. Satisfaction with the content and delivery of the email-based intervention was also noted.

CONCLUSIONS

Preliminary evidence suggests that Work and MS can help to promote vocational goals, interests and strengths among job seekers with a disability by providing a set of tools, information and linkages relating to vocational pursuits and career development. Replication with a randomized control design is indicated. Implications for Rehabilitation Research indicates a high unemployment rate among working-age adults with MS. A combination of disease-specific, psychological, programmatic and societal variables contribute to employment instability in this group. This pilot study demonstrates that an e-mail-based resource package, Work and MS, provides an innovative and feasible option for promoting consumer engagement with vocational services and, potentially, improving vocational outcomes. Work and MS has potential applicability to other disability groups.

摘要

目的

基于媒体的康复为研究残疾领域的职业行为提供了一个有力契机。然而,这项研究充其量只是初步的。本文报告了试点数据。

方法

18名成年多发性硬化症(MS)患者访问了通过电子邮件发送的、基于资源的套餐“工作与MS”。在访问前后评估职业自我效能感和身份认同(工作获取自我效能量表、我的职业状况量表——主要结果)、生活取向和抑郁情绪(修订版生活取向测试和患者健康问卷-9——次要结果)。使用Wilcoxon符号秩检验和Hedges g效应量及其相关的95%置信区间来检验前后变化分数。另外还计算了可靠变化分析,以确定个体变化分数的临床意义。

结果

职业自我效能感、身份认同和乐观主义方面报告了显著且积极的影响。30%的样本在这些关键结果中的一项或多项上报告了可靠变化分数。还注意到对基于电子邮件的干预内容和实施方式的满意度。

结论

初步证据表明,“工作与MS”可以通过提供一套与职业追求和职业发展相关的工具、信息和联系,帮助促进残疾求职者的职业目标、兴趣和优势。表明需要采用随机对照设计进行重复研究。对康复研究的启示表明,MS成年在职年龄人群的失业率很高。特定疾病、心理、项目和社会变量的综合作用导致了该群体就业不稳定。这项试点研究表明,基于电子邮件的资源套餐“工作与MS”为促进消费者参与职业服务并潜在改善职业成果提供了一种创新且可行的选择。“工作与MS”对其他残疾群体具有潜在适用性。

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