Vaudano Elisabetta
Innovative Health Initiative Joint Undertaking, Brussels, Belgium.
Front Med (Lausanne). 2025 Apr 1;12:1554948. doi: 10.3389/fmed.2025.1554948. eCollection 2025.
The use of "Big Data" in health research could be a game changer to revolutionize the field and drive innovation. However, the complexity of health data and of the healthcare ecosystem makes big data applications challenging. To overcome these challenges, it is essential that all stakeholders, both data owners and users, feel comfortable with the data use and the results of the analyses. This can only be achieved using a collaborative approach that prioritizes transparency and trust. The European Innovative Health Initiative (IHI) is a prime example of a successful public-private partnership that has achieved this. By fostering a culture of collaboration and trust, the IHI has enabled unprecedented access to large amounts of health data, improved data quality and standards, and created valuable resources and knowledge for progress in areas of unmet public health need. This perspective explores the IHI model and highlights examples from its projects that demonstrate its power as a catalyst for big data-driven health research and innovation. By sharing lessons learned and best practices, we aim to contribute to the development of a robust data-driven evidence base for the translation of research into improved patient care practices and products.
在健康研究中使用“大数据”可能会成为改变游戏规则的因素,彻底变革该领域并推动创新。然而,健康数据以及医疗生态系统的复杂性使得大数据应用颇具挑战性。为克服这些挑战,至关重要的是,所有利益相关者,包括数据所有者和用户,都能对数据使用及分析结果感到放心。这只有通过采用优先考虑透明度和信任的协作方法才能实现。欧洲创新健康倡议(IHI)就是成功的公私合作伙伴关系的一个典范,它做到了这一点。通过培育协作和信任的文化,IHI实现了前所未有的对大量健康数据的访问,提高了数据质量和标准,并为在未满足的公共卫生需求领域取得进展创造了宝贵的资源和知识。本观点探讨了IHI模式,并突出了其项目中的实例,这些实例展示了其作为大数据驱动的健康研究和创新催化剂的力量。通过分享经验教训和最佳实践,我们旨在为建立一个强大的数据驱动证据基础做出贡献,以便将研究转化为改善患者护理实践和产品。