Lohmae Userow, Pattanasombutsook Maneeratsami, Chantarasiripoot Boonkanas, Chemama Nursaheeda, Thepsao Saowapa, Maramoh Rusna
Boromarajonani College of Nursing Yala, Faculty of Nursing, Praboromajchanok Institute, Thailand.
Yala Hospital, Yala Province, Thailand.
Belitung Nurs J. 2025 Apr 19;11(2):155-162. doi: 10.33546/bnj.3696. eCollection 2025.
A child with congenital heart disease requires complex surgeries and intensive postoperative care, causing significant stress for caregivers. Muslim caregivers, in particular, rely on their faith for strength.
To explore the experiences of Muslim mothers caring for children who have undergone open heart surgery due to congenital heart disease.
The study used a qualitative descriptive design conducted between February and June 2023. Data were collected through in-depth interviews with 12 Muslim mothers selected through purposive sampling, and thematic analysis was employed for data analysis.
Three main themes identified: 1) Strengthening faith and trust in God, which includes two subthemes-embracing acceptance amidst divine attribution and utilizing faith and belief as a wellspring of spiritual shelter, 2) Cultivating patience and resilience in life, encompassing two subthemes-endurance in caring with unconditional love and fostering resilience for coping strategies, and 3) The significance of social support systems, consisting two subthemes-healthcare professionals' support and family support.
This study revealed the complex emotional experiences, including sadness, loss, uncertainty, and resilience, of Muslim mothers whose children face open heart surgery and highlighted the vital role of holistic support from healthcare professionals and families. Recommendations in line with holistic nursing principles include providing comprehensive information, faith-based psychological support, and involving the family's caregiving capacity. The study also calls for further research within the holistic nursing context, including programs to enhance psychosocial support in similar situations.
患有先天性心脏病的儿童需要进行复杂的手术和 intensive 术后护理，这给照顾者带来了巨大压力。尤其是穆斯林照顾者，他们依靠自己的信仰获取力量。
探讨穆斯林母亲照顾因先天性心脏病接受心脏直视手术的儿童的经历。
本研究采用定性描述性设计，于2023年2月至6月进行。通过对12名通过目的抽样选取的穆斯林母亲进行深入访谈收集数据，并采用主题分析法进行数据分析。
确定了三个主要主题：1）加强对上帝的信仰和信任，包括两个子主题——在神圣归因中接受现实以及将信仰作为精神庇护的源泉，2）在生活中培养耐心和复原力，包括两个子主题——以无条件的爱进行护理时的忍耐以及培养应对策略的复原力，3）社会支持系统的重要性，包括两个子主题——医疗保健专业人员的支持和家庭支持。
本研究揭示了孩子面临心脏直视手术的穆斯林母亲复杂的情感经历，包括悲伤、失落、不确定性和复原力，并强调了医疗保健专业人员和家庭提供全面支持的重要作用。符合整体护理原则的建议包括提供全面信息、基于信仰的心理支持以及发挥家庭的护理能力。该研究还呼吁在整体护理背景下进行进一步研究，包括在类似情况下加强心理社会支持的项目。
