Ni Tiffany T, Graham Amy Patricia Ruth, Moltaji Syena, Baltzer Heather L
Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.
Division of Plastic, Reconstructive, and Aesthetic Surgery, Department of Surgery, University of Toronto, Toronto, ON, Canada.
Plast Surg (Oakv). 2025 Apr 15:22925503251322525. doi: 10.1177/22925503251322525.
The emergence of facial reanimation surgery as a reconstructive option has sparked a growing interest among patients with facial paralysis, leading to an increase in patients seeking and sharing information on these surgical modalities. This study evaluated the role of social media in information-sharing on facial reanimation surgery. We identified 630 Facebook groups based on the initial keyword search for "facial paralysis" and "Bell's palsy." Groups with < 100 members, non-English content, or restricted access were excluded. Within each group, searches were conducted for terms related to surgery and posts were categorized as sharing information, seeking information, sharing support, seeking support, or sharing appreciation. The search yielded 630 groups; 21 groups met the inclusion criteria (average size = 4037, largest = 31 400). Facial reanimation surgery was discussed in 15 groups, with 487 relevant posts tabulated. In the sharing information axis, posts were related to personal experiences (63%), alternatives (14%), link shares (7%), surgeon/center (5%), general recovery progression (8%), objective information on surgical modality (1%), objective information on nerve injury (1%), and general information on relevant medical research (1%). In the seeking information axis, posts were related to personal experience (71%), objective information (12%), surgeon/center (4%), second opinion (13%), and alternatives (1%). Social media is an essential source of information and support for people with facial paralysis. These study findings will inform the implementation of future knowledge translation efforts to maximize education and subsequent uptake of facial reanimation reconstructive surgery.
面部重建手术作为一种重建选择的出现，引发了面瘫患者越来越浓厚的兴趣，导致寻求并分享这些手术方式信息的患者有所增加。本研究评估了社交媒体在面部重建手术信息共享方面的作用。我们基于对“面瘫”和“贝尔氏面瘫”的初始关键词搜索，识别出630个脸书群组。成员少于100人、内容为非英语或访问受限的群组被排除。在每个群组中，搜索与手术相关的术语，并将帖子分类为分享信息、寻求信息、分享支持、寻求支持或分享感激之情。搜索得到630个群组；21个群组符合纳入标准（平均规模 = 4037，最大规模 = 31400）。15个群组讨论了面部重建手术，整理出487篇相关帖子。在分享信息类别中，帖子涉及个人经历（63%）、替代方案（14%）、链接分享（7%）、外科医生/中心（5%）、一般恢复进程（8%）、手术方式的客观信息（1%）、神经损伤的客观信息（1%）以及相关医学研究的一般信息（1%）。在寻求信息类别中，帖子涉及个人经历（71%）、客观信息（12%）、外科医生/中心（4%）、二次意见（13%）以及替代方案（1%）。社交媒体是面瘫患者信息和支持的重要来源。这些研究结果将为未来知识转化工作的实施提供参考，以最大限度地开展教育并促进后续对面部重建手术的接受。
