McMullan Christel, Haroon Shamil, Turner Grace, Aiyegbusi Olalekan Lee, Hughes Sarah E, Flanagan Sarah, Subramanian Anuradhaa, Nirantharakumar Krish, Davies Elin Haf, Frost Chris, Jackson Louise, Guan Naijie, Alder Yvonne, Chong Amy, Buckland Lewis, Jeyes Felicity, Stanton David, Calvert Melanie
Centre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
Sci Rep. 2025 Apr 25;15(1):14467. doi: 10.1038/s41598-025-96319-6.
Long COVID is highly prevalent and debilitating, with key symptoms including fatigue, breathlessness, and brain fog. Pacing is an approach to energy conservation used to help people with chronic conditions like ME/CFS manage the impact of their condition, and could be a useful strategy for people with Long COVID. The aim of this study was to explore the views and experiences of non-hospitalised adults with Long COVID of pacing as an intervention. This mixed methods study is part of the Therapies for Long COVID (TLC) Feasibility trial. A feasibility questionnaire was developed for participants. In addition, semi-structured interviews were conducted with a sub-sample of participants at the end of the study and these interviews were analysed using the reflexive thematic analysis approach. 28 participants completed the feasibility questionnaire and 19 participants took part in a qualitative interview. Participants found that pacing helped improve motivation and activity planning. Concerns included challenges due to time constraints, complexity of the intervention, and limited instructions. Pacing for Long COVID may offer potential benefits and is feasible but further research is required to demonstrate its benefits. Overall, research on pacing in the context of Long COVID has the potential to enhance our understanding of symptom management and rehabilitation strategies for this emerging population.
长期新冠病毒感染极为普遍且使人虚弱,主要症状包括疲劳、呼吸急促和脑雾。节奏调整是一种用于保存能量的方法,旨在帮助患有如肌痛性脑脊髓炎/慢性疲劳综合征等慢性病的人应对病情影响,对长期新冠病毒感染患者可能也是一种有用的策略。本研究的目的是探讨未住院的长期新冠病毒感染成年患者对节奏调整作为一种干预措施的看法和体验。这项混合方法研究是长期新冠病毒感染治疗(TLC)可行性试验的一部分。为参与者设计了一份可行性调查问卷。此外,在研究结束时对部分参与者进行了半结构化访谈,并采用反思性主题分析方法对这些访谈进行了分析。28名参与者完成了可行性调查问卷,19名参与者参加了定性访谈。参与者发现节奏调整有助于提高积极性和活动规划能力。担忧包括时间限制带来的挑战、干预措施的复杂性以及指导说明有限。针对长期新冠病毒感染的节奏调整可能带来潜在益处且具有可行性,但需要进一步研究来证明其益处。总体而言,在长期新冠病毒感染背景下对节奏调整的研究有潜力增进我们对这一新兴人群症状管理和康复策略的理解。