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姑息治疗中的非正式照料者负担与家庭医生的作用:一项范围综述

Informal Caregiver Burden in Palliative Care and the Role of the Family Doctor: A Scoping Review.

作者信息

Lapa Laura, Cardoso Marta, Rego Francisca

机构信息

Unidade de Saúde Familiar Nova Mateus, Unidade Local de Saúde de Trás-os-Montes e Alto Douro, 5000-577 Vila Real, Portugal.

Unidade de Saúde Familiar Régua, Unidade Local de Saúde de Trás-os-Montes e Alto Douro, 5050-275 Peso da Régua, Portugal.

出版信息

Healthcare (Basel). 2025 Apr 19;13(8):939. doi: 10.3390/healthcare13080939.

Abstract

Caregivers play a central role in supporting patients in palliative care but often face significant challenges to their physical, emotional, social, and financial well-being. Family doctors are uniquely positioned to help alleviate this burden through early identification, targeted interventions, and coordinated care. This scoping review analyzed existing literature on caregiver burden in palliative care to explore the specific role of family doctors in identifying, preventing, and reducing this burden. : A scoping review was carried out following the methodology set out by the Joanna Briggs Institute. The following databases were searched: PubMed, the Cochrane Library, Scopus, the National Institute for Health and Care Excellence, and the British Medical Journal. The search strategy was based on the use of the following keywords and Medical Subject Headings: "caregiver burden" AND "palliative care" AND ("family physician" OR "general practitioners" OR "primary care physicians"). The search was performed on 10 March 2024, with a time horizon between 2013 and 2023. : From 259 identified articles, 8 met the inclusion criteria. Key themes included factors influencing caregiver burden, strategies used by family doctors to mitigate it, and challenges in providing support. Family doctors play a crucial role in offering psychological support, educating caregivers on disease progression, and coordinating multidisciplinary care. : The active involvement of family doctors significantly reduces caregiver burden by addressing emotional distress, improving communication, and ensuring care coordination. Key interventions include early distress screening, tailored education, and access to multidisciplinary networks. Strengthening their integration in palliative care teams is essential for optimizing patient and caregiver outcomes.

摘要

在姑息治疗中,照护者在支持患者方面发挥着核心作用,但他们自身的身体、情感、社会和经济福祉往往面临重大挑战。家庭医生在通过早期识别、有针对性的干预措施和协调护理来帮助减轻这一负担方面具有独特的地位。本范围综述分析了关于姑息治疗中照护者负担的现有文献,以探讨家庭医生在识别、预防和减轻这一负担方面的具体作用。:按照乔安娜·布里格斯研究所制定的方法进行了范围综述。搜索了以下数据库:PubMed、考科蓝图书馆、Scopus、英国国家卫生与临床优化研究所和《英国医学杂志》。搜索策略基于使用以下关键词和医学主题词:“照护者负担”与“姑息治疗”以及(“家庭医生”或“全科医生”或“初级保健医生”)。搜索于2024年3月10日进行,时间范围为2013年至2023年。:从259篇已识别的文章中,有8篇符合纳入标准。关键主题包括影响照护者负担的因素、家庭医生用于减轻负担的策略以及提供支持方面的挑战。家庭医生在提供心理支持、就疾病进展对照护者进行教育以及协调多学科护理方面发挥着关键作用。:家庭医生的积极参与通过解决情感困扰、改善沟通和确保护理协调,显著减轻了照护者的负担。关键干预措施包括早期困扰筛查、量身定制的教育以及多学科网络的接入。加强他们在姑息治疗团队中的整合对于优化患者和照护者的结局至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d9d0/12027401/efec43d7c07e/healthcare-13-00939-g001.jpg

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