倾听照护者的心声：长期患病卧床的老年患者的非正式家庭照护者负担。
Listening to Caregivers' Voices: The Informal Family Caregiver Burden of Caring for Chronically Ill Bedridden Elderly Patients.
机构信息
Department of Adult Nursing and the Aged, Faculty of Nursing, Thammasat University, Khlong Luang, Pathum Thani 12121, Thailand.
Excellence Center in Creative Engineering Design and Development, Faculty of Engineering, Thammasat University, Khlong Luang, Pathum Thani 12121, Thailand.
出版信息
Int J Environ Res Public Health. 2022 Jan 5;19(1):567. doi: 10.3390/ijerph19010567.
The informal family caregiver burden (IFCB) for chronically ill bedridden elderly patients (CIBEPs) is a major issue worldwide. It is a significant challenge due to the ongoing increased palliative care in the family setting; therefore, we explored the IFCB of caring for CIBEPs in Thailand. This article utilized a qualitative method, the total interpretive structural modeling (TISM) approach, with purposive sampling of thirty respondents between September and December 2020. The data were analyzed using cross-impact matrix multiplication applied to classification (MICMAC) to determine the relationship between the driving and dependence power of the enabling factors. The IFCB of the palliative care of CIBEPs was associated with primary care, nursing, extrinsic monitoring and complication prevention. The results showed that the IFCB involves taking responsibility, daily workload, follow-up caring, caring tasks, caregiving strain, financial distress, patient support, external support and caregiving strategy; thus, assistance with taking responsibility, extrinsic monitoring and follow-up care daily tasks may reduce the caregiver burden.
慢性卧床不起的老年患者（CIBEPs）的非正式家庭照顾者负担（IFCB）是一个全球性的主要问题。由于在家庭环境中持续增加的姑息治疗，这是一个重大挑战；因此，我们探讨了泰国照顾 CIBEPs 的 IFCB。本文采用定性方法，即总解释结构模型（TISM）方法，于 2020 年 9 月至 12 月间采用目的抽样法抽取了 30 名受访者。使用交叉影响矩阵乘法分类（MICMAC）分析数据，以确定使能因素的驱动和依赖关系。CIBEPs 姑息治疗的 IFCB 与初级保健、护理、外在监测和并发症预防有关。结果表明，IFCB 涉及承担责任、日常工作量、后续护理、护理任务、护理压力、经济困难、患者支持、外部支持和护理策略；因此，协助承担责任、外在监测和日常后续护理任务可能会减轻照顾者的负担。
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