Monash Nursing and Midwifery, Monash University, Melbourne, Victoria, Australia.
Medical School, The University of Western Australia, Perth, Western Australia, Australia.
Health Soc Care Community. 2020 Nov;28(6):2160-2171. doi: 10.1111/hsc.13027. Epub 2020 Jun 3.
The study objective was to explore the characteristics of rural general practice which exemplify optimal end-of-life (EOL) care from the perspective of people diagnosed with cancer, their informal carers and general practitioners (GPs); and the extent to which consumers perceived that actual EOL care addressed these characteristics. Semi-structured telephone interviews were conducted with six people diagnosed with cancer, three informal carers and four GPs in rural and regional Australia. Using a social constructionist approach, thematic analysis was undertaken. Seven characteristics were perceived to be essential for optimal EOL care: (1) commitment and availability, (2) building of therapeutic relationships, (3) effective communication, (4) psychosocial support, (5) proficient symptom management, (6) care coordination and (7) recognition of the needs of carers. Most GPs consistently addressed these characteristics. Comprehensive EOL care that meets the needs of people dying with cancer is not beyond the resources of rural and regional GPs and communities.
研究目的是从癌症患者、其非正式照顾者和全科医生（GP）的角度探讨农村全科医学的特点，这些特点体现了临终关怀的最佳实践；以及消费者认为实际临终关怀服务在多大程度上满足了这些特点。研究在澳大利亚农村和地区进行，采用半结构化电话访谈的方式，对 6 名癌症患者、3 名非正式照顾者和 4 名全科医生进行了访谈。研究采用社会建构主义方法，进行了主题分析。受访者认为，有七个特征对于最佳临终关怀至关重要：（1）承诺和可用性；（2）建立治疗关系；（3）有效沟通；（4）心理社会支持；（5）熟练的症状管理；（6）护理协调；（7）照顾者需求的认可。大多数全科医生始终关注这些特征。满足癌症晚期患者需求的全面临终关怀服务并不超出农村和地区全科医生和社区的资源能力。
