Lombardi M, Claes C, Vandenbussche H, Gómez L E, Schalock R L
HOGENT University of Applied Sciences and Arts, Belgium; University of Ghent, Belgium.
University of Ghent, Belgium.
Res Dev Disabil. 2025 Jul;162:105025. doi: 10.1016/j.ridd.2025.105025. Epub 2025 Apr 25.
A quality of life (QOL) framework, theoretically grounded and contextually sensitive, has been used to measure the impact of policy outcomes such as the United Nations Convention on the Rights of Persons with Disabilities (CRPD). This article presents an operational definition of supports to implement the CRPD toward QOL outcomes using a participative process. Each item of the CRPD has been paired by the means of an international Delphi study to specific support strategies. A panel of 93 experts (by knowledge and experience) from 17 countries participated in a multi-round process to define specific supports and their exportability to people with a disability. Consensus was achieved reaching an agreement of 75 % on 85 pairings of CRPD items-elements of supports and related support strategies to promote the impact of CRPD articles towards QOL outcomes. Furthermore, the operationalization of the CRPD through the development of assessment instruments, and the suggested strategies serve as an exemplary application of a QOL framework for policy implementation.
一个理论基础扎实且对具体情境敏感的生活质量（QOL）框架已被用于衡量诸如《联合国残疾人权利公约》（CRPD）等政策成果的影响。本文通过一个参与性过程，给出了为实现CRPD的生活质量成果而提供支持的操作性定义。CRPD的每一项条款都通过一项国际德尔菲研究与特定的支持策略进行了配对。来自17个国家的93位（在知识和经验方面）专家组成的小组参与了一个多轮过程，以确定具体的支持措施及其对残疾人的适用性。达成了共识，在85对CRPD条款 - 支持要素及相关支持策略上达成了75%的一致意见，以促进CRPD条款对生活质量成果的影响。此外，通过开发评估工具对CRPD进行操作化，所建议的策略是生活质量框架在政策实施中的一个示例性应用。
