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本文引用的文献

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Gendered Worlds of Pain: Women, Marginalization, and Chronic Pain.性别化的疼痛世界:女性、边缘化与慢性疼痛。
J Pain. 2024 Nov;25(11):104626. doi: 10.1016/j.jpain.2024.104626. Epub 2024 Jul 11.
2
A scoping review of chronic pain in emerging adults.对新兴成年人慢性疼痛的范围综述。
Pain Rep. 2021 Apr 5;6(1):e920. doi: 10.1097/PR9.0000000000000920. eCollection 2021.
3
Chronic Primary or Secondary Noninflammatory Musculoskeletal Pain and Disrupted Sexual Function and Relationships: A Systematic Review.慢性原发性或继发性非炎症性肌肉骨骼疼痛与性功能和人际关系紊乱:系统综述。
Arthritis Care Res (Hoboken). 2022 Jun;74(6):1019-1037. doi: 10.1002/acr.24711. Epub 2022 Mar 25.
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The Experiences of Persistent Pain Among Women With a History of Intimate Partner Violence: A Systematic Review.有亲密伴侣暴力史的女性持续性疼痛体验:系统评价。
Trauma Violence Abuse. 2022 Apr;23(2):490-505. doi: 10.1177/1524838020957989. Epub 2020 Sep 18.
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The gender context of pain.疼痛的性别背景。
Health Psychol Rev. 2021 Sep;15(3):454-481. doi: 10.1080/17437199.2020.1813602. Epub 2020 Sep 8.
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The revised International Association for the Study of Pain definition of pain: concepts, challenges, and compromises.修订后的国际疼痛研究协会疼痛定义:概念、挑战和妥协。
Pain. 2020 Sep 1;161(9):1976-1982. doi: 10.1097/j.pain.0000000000001939.
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Chronic pain: a review of its epidemiology and associated factors in population-based studies.慢性疼痛:基于人群的研究中其流行病学及相关因素的综述。
Br J Anaesth. 2019 Aug;123(2):e273-e283. doi: 10.1016/j.bja.2019.03.023. Epub 2019 May 10.
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"Brave Men" and "Emotional Women": A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain.“勇敢的男性”与“情绪化的女性”:一项关于医疗保健中性别偏见及对慢性疼痛患者的性别规范的理论导向文献综述
Pain Res Manag. 2018 Feb 25;2018:6358624. doi: 10.1155/2018/6358624. eCollection 2018.
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Prevalence of Chronic Pain, Treatments, Perception, and Interference on Life Activities: Brazilian Population-Based Survey.慢性疼痛的患病率、治疗、认知及对生活活动的影响:基于巴西人群的调查
Pain Res Manag. 2017;2017:4643830. doi: 10.1155/2017/4643830. Epub 2017 Sep 26.
10
Hypermobility, the Ehlers-Danlos syndromes and chronic pain.关节过度活动、埃勒斯-当洛综合征与慢性疼痛。
Clin Exp Rheumatol. 2017 Sep-Oct;35 Suppl 107(5):116-122. Epub 2017 Sep 28.

“这就是我的未来?”:通过叙事探究理解患有慢性疼痛的成年早期女性的生活

"This Is My Future?": Understanding the Lives of Emerging Adult Women Living with Chronic Pain Through a Narrative Inquiry.

作者信息

Finlay Jenise, Dela Cruz Aniela M

机构信息

University of Calgary, AB, Canada.

出版信息

Glob Qual Nurs Res. 2025 Apr 17;12:23333936251335531. doi: 10.1177/23333936251335531. eCollection 2025 Jan-Dec.

DOI:10.1177/23333936251335531
PMID:40291463
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12033661/
Abstract

Chronic pain disproportionately affects women yet is often underestimated by medical professionals. In Canada, chronic pain rates have risen significantly, particularly among those aged 20 to 29 without other health conditions. However, limited qualitative research focuses on chronic pain exclusively in women under 30. By focusing on gender, this narrative inquiry study examined how societal narratives and stereotypes uniquely affect emerging adult women's experiences of chronic pain, contributing to their dismissal and invisibility in both personal and institutional contexts. Two key narrative threads were co-created with participants through analysis of their stories: silenced, invisible, and locating self with pain, and resisting singular stories of people living with chronic pain. Participants' shared family narratives of dismissal, stories of being silenced in health care, and dominant narratives in the context of age and gender that shaped the participants' stories to live by. This study demonstrates the importance of recognizing people in the midst of living with chronic pain. Understanding unique pain experiences during emerging adulthood can improve treatment options and long-term outcomes for this demographic.

摘要

慢性疼痛对女性的影响尤为严重,但往往被医学专业人员低估。在加拿大,慢性疼痛的发生率显著上升,尤其是在20至29岁且无其他健康问题的人群中。然而,有限的定性研究仅聚焦于30岁以下女性的慢性疼痛。通过关注性别,这项叙事探究研究考察了社会叙事和刻板印象如何独特地影响成年早期女性的慢性疼痛经历,导致她们在个人和机构环境中被忽视且不被关注。通过对参与者故事的分析,与他们共同创建了两条关键的叙事线索:沉默、隐形以及带着疼痛定位自我,以及抵制慢性疼痛患者的单一故事。参与者分享了家庭中被忽视的叙事、在医疗保健中被沉默的故事,以及在年龄和性别的背景下塑造参与者生活故事的主导叙事。这项研究证明了在慢性疼痛患者生活中认识他们的重要性。了解成年早期独特的疼痛经历可以改善这一人群的治疗选择和长期预后。