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支持自闭症儿童参与研究:一项关于让自闭症儿童熟悉人形机器人的混合方法研究。

Supporting Autistic Children's Participation in Research Studies: A Mixed-Methods Study of Familiarizing Autistic Children with A Humanoid Robot.

作者信息

McGregor Carly, von dem Hagen Elisabeth, Wallbridge Christopher, Dobbs Jenna, Svenson-Tree Caitlyn, Jones Catherine Rg

机构信息

Wales Autism Research Centre, School of Psychology, Cardiff University, Cardiff, UK.

Centre for Artificial Intelligence, Robotics and Human-Machine Systems (IROHMS), Cardiff University, Cardiff, UK.

出版信息

Autism Dev Lang Impair. 2025 Apr 24;10:23969415251332486. doi: 10.1177/23969415251332486. eCollection 2025 Jan-Dec.

Abstract

It is important that autism research is inclusive and supports the participation of a wide range of autistic people. However, there has been limited research on how to make studies accessible for autistic participants. This mixed-methods study explored how to promote the comfort of autistic children in research, using the specific example of visiting a research lab and meeting a humanoid robot. In Phase 1, 14 parents of autistic children were interviewed about how their child could be made comfortable during a lab visit, including different approaches for familiarizing their child with the robot. In Phase 2, autistic children of the parents in Phase 1 ( = 10) visited the lab and completed familiarization activities with a humanoid robot. The opinions of the children and their parents about the children's experiences were recorded. Using reflexive thematic analysis, five overarching themes reflected how to best support autistic child participants. These themes encompassed elements of particular relevance to robot studies but also many practices of general relevance to participating in research: (1) preparation is key, (2) consideration of environmental factors, (3) using familiarization, (4) a supportive and engaged researcher, and (5) individualized approaches. Based on our findings, we report preliminary and generalizable best-practice recommendations to support autistic children in a research setting and promote positive experiences.

摘要

自闭症研究具有包容性并支持广泛的自闭症患者参与其中,这一点很重要。然而,关于如何让自闭症参与者能够方便地参与研究的相关研究却很有限。这项混合方法研究以参观研究实验室和与类人机器人会面为例,探讨了如何提高自闭症儿童在研究中的舒适度。在第一阶段,对14位自闭症儿童的家长进行了访谈,了解如何让他们的孩子在实验室参观期间感到舒适,包括让孩子熟悉机器人的不同方法。在第二阶段,第一阶段的家长中的自闭症儿童(n = 10)参观了实验室,并与一个类人机器人完成了熟悉活动。记录了孩子及其家长对孩子经历的看法。通过反思性主题分析,五个总体主题反映了如何最好地支持自闭症儿童参与者。这些主题既包含了与机器人研究特别相关的元素,也包含了许多与参与研究普遍相关的做法:(1)准备是关键,(2)考虑环境因素,(3)使用熟悉过程,(4)有支持性且积极参与的研究人员,以及(5)个性化方法。基于我们的研究结果,我们报告了初步的、可推广的最佳实践建议,以在研究环境中支持自闭症儿童并促进积极的体验。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/416a/12034964/94c6c5a005c8/10.1177_23969415251332486-fig1.jpg

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