Ray Shramana, Shetty Asha, Dwibedi Bhagirathi
Nursing, All India Institute of Medical Sciences, Bhubaneswar, Bhubaneswar, IND.
College of Nursing, All India Institute of Medical Sciences, Bhubaneswar, Bhubaneswar, IND.
Cureus. 2025 Mar 28;17(3):e81389. doi: 10.7759/cureus.81389. eCollection 2025 Mar.
Background Caregivers of children with congenital heart disease (CHD) often experience stress, uncertainty, and challenges in managing their child's care after hospital discharge. A structured transition care approach can help ease this process by improving caregivers' preparedness, awareness, and satisfaction with post-discharge care. Objective This study aims to develop and evaluate a nurse-led transition care guidance (TCG) program to enhance caregivers' readiness, awareness, and satisfaction during the transition from hospital to home care for children with CHD. Method A mixed-methods approach was used, consisting of a quasi-experimental quantitative phase to assess the effectiveness of the TCG intervention by comparing caregivers' readiness and satisfaction scores before and after implementation and qualitative focus group discussions (FGDs) to explore caregivers' unmet needs and challenges during the transition process. Data sources include caregiver surveys, post-discharge follow-up interviews, and hospital records. Thematic analysis will be conducted on FGDs to identify key issues affecting caregivers. Results The intervention is expected to improve caregivers' ability to provide care, increase their understanding of medical needs, and enhance their overall satisfaction with the transition process. Qualitative findings will highlight common challenges and gaps in post-discharge support. Conclusion This study will contribute to the development of evidence-based transition care plans that optimize the hospital-to-home transition for children with CHD. It highlights the importance of structured, nurse-led interventions to improve post-discharge outcomes for both caregivers and patients.
先天性心脏病(CHD)患儿的照顾者在患儿出院后管理其护理时,常常会经历压力、不确定性和挑战。一种结构化的过渡护理方法可以通过提高照顾者对出院后护理的准备程度、认知度和满意度来帮助缓解这一过程。
本研究旨在开发并评估一项由护士主导的过渡护理指导(TCG)项目,以提高先天性心脏病患儿从医院过渡到家庭护理期间照顾者的准备程度、认知度和满意度。
采用混合方法,包括一个准实验性定量阶段,通过比较实施前后照顾者的准备程度和满意度得分来评估TCG干预的效果,以及定性焦点小组讨论(FGD),以探索照顾者在过渡过程中未满足的需求和挑战。数据来源包括照顾者调查、出院后随访访谈和医院记录。将对焦点小组讨论进行主题分析,以确定影响照顾者的关键问题。
预计该干预将提高照顾者提供护理的能力,增加他们对医疗需求的理解,并提高他们对过渡过程的总体满意度。定性研究结果将突出出院后支持方面的常见挑战和差距。
本研究将有助于制定基于证据的过渡护理计划,优化先天性心脏病患儿从医院到家庭的过渡。它强调了结构化的、由护士主导的干预措施对于改善照顾者和患者出院后结局的重要性。