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一个特别隐蔽的群体:性少数和性别少数痴呆症照料者。

An especially hidden population: sexual and gender minority dementia caregivers.

作者信息

Kittle Krystal R, Flatt Jason D, Anderson Joel G

机构信息

Department of Health Promotion and Policy, School of Public Health and Health Sciences, University of Massachusetts-Amherst, Amherst, Massachusetts, USA.

Department of Social and Behavioral Health, School of Public Health, University of Nevada-Las Vegas, Las Vegas, Nevada, USA.

出版信息

Alzheimers Dement. 2025 Apr;21(4):e70190. doi: 10.1002/alz.70190.

DOI:10.1002/alz.70190
PMID:40302022
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12040755/
Abstract

BACKGROUND

Sexual and gender minority (SGM) people are underrepresented in Alzheimer's disease and related dementias (ADRD) caregiving research. This study examines potential factors associated with the health of SGM ADRD caregivers.

METHODS

A secondary analysis using data from an online survey with a sample of SGM ADRD caregivers (n = 286). Hierarchical regression models tested associations between health outcomes and socioenvironmental, stigma, and risk and protective factors.

RESULTS

Bisexual caregivers reported more stress, albeit better health than gay caregivers. Like bisexual caregivers, queer/other caregivers reported higher global health scores than gay caregivers. However, queer/other caregivers did not report significantly more stress. Transgender caregivers reported lower health scores than cisgender caregivers. Hispanic/Latino (H/L) caregivers reported worse health, but lower levels or perceived stress than non-H/Ls.

DISCUSSION

This study highlights factors associated with SGM caregivers' health, which can serve as targets for the development of caregiver supports, as well as further exploration of the unique experiences of SGM caregivers.

HIGHLIGHTS

The health of SGM ADRD caregivers varies by sexual orientation and gender identity. Bisexual caregivers reported more stress but better health than gay caregivers. Transgender caregivers reported worse health than cisgender caregivers. Hispanic/Latino (H/L) caregivers reported worse health than non-H/L caregivers.

摘要

背景

性取向和性别少数群体(SGM)在阿尔茨海默病及相关痴呆症(ADRD)护理研究中的代表性不足。本研究探讨了与SGM ADRD护理者健康相关的潜在因素。

方法

对一项针对SGM ADRD护理者样本(n = 286)的在线调查数据进行二次分析。分层回归模型检验了健康结果与社会环境、耻辱感以及风险和保护因素之间的关联。

结果

双性恋护理者报告的压力更大,尽管其健康状况比同性恋护理者更好。与双性恋护理者一样,酷儿/其他护理者报告的总体健康得分高于同性恋护理者。然而,酷儿/其他护理者报告的压力并没有显著增加。跨性别护理者报告的健康得分低于顺性别护理者。西班牙裔/拉丁裔(H/L)护理者报告的健康状况较差,但感知到的压力水平低于非H/L护理者。

讨论

本研究强调了与SGM护理者健康相关的因素,这些因素可作为开发护理者支持措施的目标,以及进一步探索SGM护理者独特经历的方向。

要点

SGM ADRD护理者的健康因性取向和性别认同而异。双性恋护理者报告的压力更大,但健康状况比同性恋护理者更好。跨性别护理者报告的健康状况比顺性别护理者更差。西班牙裔/拉丁裔(H/L)护理者报告的健康状况比非H/L护理者更差。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d964/12040755/e9da224f9091/ALZ-21-e70190-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d964/12040755/e9da224f9091/ALZ-21-e70190-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d964/12040755/e9da224f9091/ALZ-21-e70190-g001.jpg

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2023 Alzheimer's disease facts and figures.2023 年阿尔茨海默病事实和数据。
Alzheimers Dement. 2023 Apr;19(4):1598-1695. doi: 10.1002/alz.13016. Epub 2023 Mar 14.
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同居类型对痴呆患者家庭照顾者心理脆弱性的影响:来自韩国 324078 人社区健康调查的结果。
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Characteristics of Sexual and Gender Minority Caregivers of People With Dementia.痴呆患者的性少数和跨性别群体照顾者的特征。
J Aging Health. 2021 Dec;33(10):838-851. doi: 10.1177/08982643211014767. Epub 2021 May 16.
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Alzheimers Dement. 2019 Jan;15(1):17-24. doi: 10.1016/j.jalz.2018.06.3063. Epub 2018 Sep 19.
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Correlates of Subjective Cognitive Decline in Lesbian, Gay, Bisexual, and Transgender Older Adults.同性恋、双性恋和跨性别老年群体主观认知衰退的相关因素。
J Alzheimers Dis. 2018;64(1):91-102. doi: 10.3233/JAD-171061.
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