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痴呆患者的性少数和跨性别群体照顾者的特征。

Characteristics of Sexual and Gender Minority Caregivers of People With Dementia.

机构信息

College of Nursing, 4292University of Tennessee-Knoxville, Knoxville TN, USA.

School of Public Health, 14722University of Nevada-Las Vegas, Las Vegas, NV, USA.

出版信息

J Aging Health. 2021 Dec;33(10):838-851. doi: 10.1177/08982643211014767. Epub 2021 May 16.

Abstract

Given what little is known about the experiences of sexual and gender minority (SGM) caregivers of people with Alzheimer's disease and related dementias (ADRD), the aim of the current study was to describe psychosocial measures among these caregivers. We used an online survey and social media recruitment strategies. Of 286 caregivers, the majority were gay men. Most respondents were white, with a third identifying as Latino American. The plurality of caregivers identified as a spouse/partner and were providing care for someone who identified as a sexual minority; one-fifth cared for someone transgender. Sexual orientation, perceived stress, caregiver stigma, and microaggressions were psychosocial factors associated with family quality of life and depressive symptoms in the caregivers. This study is the first to provide a focused description of the characteristics and psychosocial needs of SGM caregivers of someone with ADRD, supporting development of targeted interventions for this population.

摘要

鉴于人们对患有阿尔茨海默病和相关痴呆症(ADRD)的性少数群体和性别少数群体(SGM)照顾者的经历知之甚少,本研究旨在描述这些照顾者的社会心理措施。我们使用在线调查和社交媒体招聘策略。在 286 名照顾者中,大多数是男同性恋者。大多数受访者是白人,三分之一是拉丁裔美国人。多数照顾者是配偶/伴侣,为性少数群体的人提供护理;五分之一的人照顾跨性别者。性取向、感知压力、照顾者耻辱感和微侵犯是与照顾者的家庭生活质量和抑郁症状相关的社会心理因素。这项研究首次对患有 ADRD 的 SGM 照顾者的特征和社会心理需求进行了重点描述,为这一人群的针对性干预措施的发展提供了支持。

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4
Does Sexual Orientation Relate to Health and Well-Being? Analysis of Adults 50+ Years of Age.
Gerontologist. 2020 Sep 15;60(7):1282-1290. doi: 10.1093/geront/gnz187.
6
Racial and ethnic estimates of Alzheimer's disease and related dementias in the United States (2015-2060) in adults aged ≥65 years.
Alzheimers Dement. 2019 Jan;15(1):17-24. doi: 10.1016/j.jalz.2018.06.3063. Epub 2018 Sep 19.
7
Sexual Minority Stress, Coping, and Physical Health Indicators.
J Clin Psychol Med Settings. 2017 Dec;24(3-4):223-233. doi: 10.1007/s10880-017-9504-0.

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