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巴勒斯坦 1 型糖尿病青少年健康相关生活质量评估:一项横断面调查

Assessment of Health-Related Quality of Life Among Palestinian Adolescents With Type 1 Diabetes: A Cross-Sectional Investigation.

作者信息

Sadder Farah, Nemer Maysaa

机构信息

Institute of Community and Public Health, Birzeit University, West Bank, Birzeit P.O. Box 14, State of Palestine.

出版信息

Pediatr Diabetes. 2025 Feb 14;2025:3568243. doi: 10.1155/pedi/3568243. eCollection 2025.

Abstract

Type 1 diabetes (T1D) with its worldwide increasing incidence is one of the most serious chronic conditions of adolescence. This study aimed to assess the Palestinian adolescent diabetic patients' health-related quality of life (HRQOL) and to identify specific factors that could predict poor quality of life. We also aimed to compare adolescents' reported HRQOL to proxy reports by their parents. A cross-sectional study was carried out between November 2022 and October 2023 in the six governorates of northern West Bank/Palestine: Jenin, Nablus, Qalqilya, Salfit, Tubas, and Tulkarm. Patients who were diagnosed with T1D for over 6 months from their recruitment, aged between 10 and 18 years, were recruited from diabetes clinics of the Ministry of Health (MOH) and the Palestine Diabetes Institute (PDI). One hundred seventy adolescents and 170 parents (or guardians) completed the Pediatric Quality of Life Inventory (Peds QL) 3.2 Diabetes Module for adolescents and parents, respectively. An acceptable mean of 70.6 for the total score was reported for the Peds QL 3.2 Diabetes Module. Better scores were reported for the diabetes management summary score compared to the diabetes symptom summary score. Worry and communication were the lowest and highest reported subscores, respectively. Parents reported significantly lower results than adolescents. Income, gender, and hemoglobin A1c (HbA1c) were the main predictors of HRQOL among adolescents with T1D in Palestine. Future national health strategies should consider income differences and try to overcome health gaps among adolescents with T1D coming from low-income families. Future research is needed to explore the political and cultural aspects and their effects on HRQOL among diabetic adolescents in Palestine.

摘要

1型糖尿病(T1D)在全球范围内发病率不断上升,是青少年最严重的慢性疾病之一。本研究旨在评估巴勒斯坦青少年糖尿病患者的健康相关生活质量(HRQOL),并确定可预测生活质量差的具体因素。我们还旨在比较青少年报告的HRQOL与他们父母的代理报告。2022年11月至2023年10月在约旦河西岸北部/巴勒斯坦的六个省开展了一项横断面研究:杰宁、纳布卢斯、盖勒吉利耶、萨尔费特、图巴斯和图勒凯尔姆。从卫生部(MOH)和巴勒斯坦糖尿病研究所(PDI)的糖尿病诊所招募了自招募起已被诊断为T1D超过6个月、年龄在10至18岁之间的患者。170名青少年和170名父母(或监护人)分别完成了青少年和父母的儿童生活质量量表(Peds QL)3.2糖尿病模块。Peds QL 3.2糖尿病模块的总分平均为70.6,结果可接受。糖尿病管理总结评分的得分高于糖尿病症状总结评分。担忧和沟通分别是报告得分最低和最高的子项。父母报告的结果显著低于青少年。收入、性别和糖化血红蛋白(HbA1c)是巴勒斯坦T1D青少年HRQOL的主要预测因素。未来的国家卫生战略应考虑收入差异,并努力克服来自低收入家庭的T1D青少年之间的健康差距。未来需要开展研究,探索政治和文化方面及其对巴勒斯坦糖尿病青少年HRQOL的影响。

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