Tait Josie, Gibbs Anita, McCormack Jessica, Wilson Holly, Chu Joanna Ting Wai
Social and Community Health, School of Population Health, The University of Auckland, Auckland, New Zealand.
Sociology, Gender Studies and Criminology, University of Otago, Dunedin, New Zealand.
Drug Alcohol Rev. 2025 Jul;44(5):1468-1479. doi: 10.1111/dar.14071. Epub 2025 May 4.
Fetal Alcohol Spectrum Disorder (FASD) is a lifelong neurodisability caused by exposure to alcohol in utero. It can have a severe impact on the affected child as well as their families, yet the costs associated are unclear. This scoping review sought to identify the costs associated with raising a child with FASD.
A database search was conducted in July 2024 on PubMed, Scopus, Ovid Medline and Web of Science, searching for all empirical research on the "cost" to "caregivers" of raising a child with "FASD". Articles were excluded if they did not outline the costs of FASD, or the effects of prenatal alcohol exposure, or if they did not contain parent/caregiver response. After the removal of duplicates, 421 unique articles were found based on the search criteria. Just three articles met the inclusion/exclusion criteria. Two additional publications were identified through citation checking. Thus, five articles were included in this review. Thematic analysis was used to interpret the findings and synthesise the results.
Personal costs ranged between USD$198.13-CAD$6215,27 per person per year. These articles identified that parents incurred costs related to medical care, education, social services, productivity losses, externalising behaviours, other direct costs to the family, and psychosocial impacts on families. Differences were considered in relation to the child's age, age at the time of diagnosis, severity of disability, relationship to caregiver, location, and other demographic factors.
More research is needed to provide a more accurate estimate of the cost of raising a child with FASD.
胎儿酒精谱系障碍（FASD）是一种因子宫内接触酒精而导致的终身神经残疾。它会对受影响的儿童及其家庭产生严重影响，但相关成本尚不清楚。本范围综述旨在确定抚养患有FASD的儿童的相关成本。
2024年7月在PubMed、Scopus、Ovid Medline和Web of Science上进行了数据库搜索，搜索所有关于抚养患有“FASD”儿童的“照顾者”“成本”的实证研究。如果文章未概述FASD的成本、产前酒精暴露的影响，或未包含父母/照顾者的反应，则将其排除。在去除重复项后，根据搜索标准共找到421篇独特的文章。只有三篇文章符合纳入/排除标准。通过引文检查又确定了另外两篇出版物。因此，本综述纳入了五篇文章。采用主题分析来解释研究结果并综合结果。
个人成本每人每年在198.13美元至6215.27加元之间。这些文章指出，父母承担的成本与医疗保健、教育、社会服务、生产力损失、外化行为、家庭的其他直接成本以及对家庭的心理社会影响有关。考虑了与儿童年龄、诊断时的年龄、残疾严重程度、与照顾者的关系、地点和其他人口因素相关的差异。
需要更多的研究来更准确地估计抚养患有FASD的儿童的成本。
