Lou-Meda Randall, Patzán Mynor, Henríquez Carlos, Funes Aída, Rodríguez Carolina, Sandoval Mabel, Bonilla-Félix Melvin
Fundación Para el Niño Enfermo Renal (FUNDANIER), Guatemala, Guatemala; Hospital Roosevelt, Guatemala, Guatemala.
Fundación Para el Niño Enfermo Renal (FUNDANIER), Guatemala, Guatemala.
Semin Nephrol. 2025 Jan-Mar;45(1-2):151611. doi: 10.1016/j.semnephrol.2025.151611. Epub 2025 May 6.
Chronic kidney disease (CKD) is a public health problem worldwide. Guatemala, El Salvador, Honduras, and Nicaragua are among the top six countries of the continent with high mortality and years of life lost attributable to CKD. The magnitude of the gap in delivering pediatric kidney care in northern Central America has never been systematically documented, hindering the possibility of planning prevention and effective management. A survey was sent to the directors of pediatric kidney care referral centers in the aforementioned countries to understand the epidemiology and current state of the programs. The area has a total population of 40.4 million; 17 million (41%) are younger than 21 years. The median incidence of pediatric kidney failure (pKF) was 8.4 per million age-related population (pmarp), and the median prevalence was 34 pmarp. Peritoneal dialysis (PD) was the most prevalent kidney replacement therapy (KRT) in the form of continuous ambulatory peritoneal dialysis (CAPD). Hemodialysis (HD) was used in 26.5% of patients, and 30% had an arteriovenous fistula (AVF). Few children had access to transplantation (0.9 transplants pmarp). The rate of pediatric nephrologists pmarp ranged between 1.5 (Honduras) and 2.3 (Guatemala) pmarp. The public health system funds all four referral centers, but kidney foundations play an essential role. This article offers insight to support the development of a multinational plan for prevention, effective management, and strategic use of available resources for pediatric kidney care, including support from national and international initiatives.
慢性肾脏病(CKD)是一个全球性的公共卫生问题。危地马拉、萨尔瓦多、洪都拉斯和尼加拉瓜是该大陆因CKD导致高死亡率和寿命损失年数最多的六个国家之一。中美洲北部在提供儿科肾脏护理方面的差距程度从未得到系统记录,这阻碍了制定预防和有效管理计划的可能性。我们向上述国家的儿科肾脏护理转诊中心主任发送了一份调查问卷,以了解这些项目的流行病学情况和现状。该地区总人口为4040万;其中1700万(41%)年龄在21岁以下。儿童肾衰竭(pKF)的发病率中位数为每百万年龄相关人口8.4例(pmarp),患病率中位数为34 pmarp。腹膜透析(PD)是最常见的肾脏替代治疗(KRT)形式,即持续非卧床腹膜透析(CAPD)。26.5%的患者使用血液透析(HD),30%的患者有动静脉内瘘(AVF)。很少有儿童能够接受移植(每百万年龄相关人口0.9例移植)。每百万年龄相关人口的儿科肾病专家比例在1.5(洪都拉斯)至2.3(危地马拉)之间。公共卫生系统为所有四个转诊中心提供资金,但肾脏基金会发挥着至关重要的作用。本文提供了相关见解,以支持制定一项多国计划,用于预防、有效管理以及战略性利用现有资源进行儿科肾脏护理,包括获得国家和国际倡议的支持。