Pars Hatice, Çakir Banu
Department of Nursing, Atılım University Faculty of Health Sciences, Ankara, Turkey.
Department of Public Health, Division of Epidemiology, Hacettepe University Faculty of Medicine, Ankara, Turkey.
J Pediatr Nurs. 2025 Jul-Aug;83:146-153. doi: 10.1016/j.pedn.2025.04.034. Epub 2025 May 6.
To examine the relationship between caregiving burden and parenting stress in caregivers of children with esophageal atresia and to identify factors associated with caregiving burden. Additionally, it explores whether self-efficacy mediates this correlation.
An analytical cross-sectional study.
Data were collected from 139 caregivers using the Zarit Caregiving Burden Scale (ZCB), Coping Self-Efficacy Scale (CSE), and Parental Stress Scale (PS) between June and October 2023. Statistical analyses included structural equation modeling and logistic regression using IBM SPSS 28.0, SPSS Amos, and Jamovi software.
Among the participants, 68.3 % experienced a moderate-to-high caregiving burden. A statistically significant negative correlation was found between ZCB and CSE scores, while a moderate positive correlation was observed between ZCB and PS scores. Parenting stress was associated with caregiving burden; however, self-efficacy did not mediate this relationship.
Caregivers, particularly mothers with high parental stress, a history of miscarriage, and a gestational age above 30 weeks, should be prioritized for interventions addressing caregiving burden.
Assessing caregiving burden and stress in outpatient clinics is critical for effective home care management. Standardized discharge education and psychosocial support should be provided to caregivers to alleviate their burden.
This study fills a research gap regarding caregivers of children with esophageal atresia and provides guidance for healthcare professionals, hospital administrators, and policymakers. Promoting community-based and personal care support services is essential for reducing caregiving burden and parental stress.
This study adhered to the STARD guidelines.
No patient or public involvement.
探讨食管闭锁患儿照料者的照料负担与育儿压力之间的关系，并确定与照料负担相关的因素。此外，研究自我效能感是否在这种关联中起中介作用。
一项分析性横断面研究。
于2023年6月至10月间，使用 Zarit 照料负担量表（ZCB）、应对自我效能量表（CSE）和父母压力量表（PS），从139名照料者处收集数据。统计分析包括使用IBM SPSS 28.0、SPSS Amos和Jamovi软件进行结构方程建模和逻辑回归。
在参与者中，68.3%经历了中度至高度的照料负担。ZCB得分与CSE得分之间存在统计学上显著的负相关，而ZCB得分与PS得分之间观察到中度正相关。育儿压力与照料负担相关；然而，自我效能感并未介导这种关系。
应优先对照料负担较重的照料者进行干预，尤其是那些育儿压力高、有流产史且孕周超过30周的母亲。
在门诊评估照料负担和压力对于有效的家庭护理管理至关重要。应为照料者提供标准化的出院教育和心理社会支持，以减轻他们的负担。
本研究填补了关于食管闭锁患儿照料者的研究空白，并为医疗保健专业人员、医院管理人员和政策制定者提供了指导。推广基于社区和个人的护理支持服务对于减轻照料负担和父母压力至关重要。
本研究遵循STARD指南。
无患者或公众参与。
