Bagheri Shahpar, Sharifi Rigi Zahra, Paran Maryam, Ghaemmaghami Parvin, Hadian Shirazi Zahra, Ghobadimoghaddam Rozhan
Community Based Psychiatric Care Research Center, Department of Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran.
Student Research Committee, Department of Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran.
BMC Psychol. 2025 May 30;13(1):583. doi: 10.1186/s40359-025-02908-5.
Taking care of children with Leukemia leads to a burden and decreases their caregivers' self-efficacy. This study aimed to evaluate whether training spiritual care program impacts the self-efficacy and burden of mothers having children with Leukemia.
This randomized clinical trial was conducted on sixty-four mothers caring for their children with Leukemia, who were randomly allocated into eighteen blocks of 4 using computerized random allocation, 32 individuals were assigned to the intervention group and 32 to the control group. A training spiritual care program based on the Sound heart model was performed individually through four 30-45-minute face-to-face sessions during four weeks and a four-week follow-up. The setting was the chemotherapy department in Imam Reza educational, specialty and subspecialty clinic, affiliated with the Shiraz University of Medical Science. The data were collected using a demographic information form, the Caregiver self-efficacy questionnaire and the Caregivers Burden Inventory. The data were analyzed via descriptive and inferential statistics. All tests were two-tailed, and the statistical level was considered 0.05.
Before intervention, there was no significant difference between the control and intervention groups in terms of self-efficacy and the caregiver burden mean score (p > 0.05). However, after the intervention a significant difference was observed between the two groups in self-efficacy scores [95% CI: -80.37, -57.74] and Caregiver Burden scores [95% CI: 10.34, 20.28] (p < 0.001). Also, the mean scores of caregivers' burden was decreased, and self-efficacy increased significantly from pre-intervention to post-intervention in the intervention groups (p < 0.001). At the same time, there were no significant differences in the control groups. Also, there was a significant and reverse correlation between self-efficacy and caregiver burden (r = 0.678, P < 0.001).
Spiritual care program based on the Sound heart model improves self-efficacy and decreases caregivers' burden in mothers of children with Leukemia. The use of this model is recommended for addressing the spiritual needs of mothers with children diagnosed with leukemia and for guiding health professionals in developing spiritual and healing care programs in clinical practice.
IRCT20210410050924N1 Registration date 20,210,504.
照顾白血病患儿会带来负担，并降低其照顾者的自我效能感。本研究旨在评估精神关怀培训项目是否会影响白血病患儿母亲的自我效能感和负担。
本随机临床试验针对64名照顾白血病患儿的母亲开展，通过计算机随机分配将她们随机分为18个每组4人的区组，32人被分配到干预组，32人被分配到对照组。基于健全心灵模式的精神关怀培训项目通过四周内每周一次、每次30 - 45分钟的面对面课程单独进行，并进行为期四周的随访。研究地点为设拉子医科大学附属伊玛目礼萨教育、专科及亚专科诊所的化疗科。使用人口统计学信息表、照顾者自我效能量表和照顾者负担量表收集数据。通过描述性和推断性统计分析数据。所有检验均为双侧检验，统计学水平设定为0.05。
干预前，对照组和干预组在自我效能感和照顾者负担平均得分方面无显著差异（p > 0.05）。然而，干预后两组在自我效能感得分[95%置信区间：-80.37，-57.74]和照顾者负担得分[95%置信区间：10.34，20.28]上存在显著差异（p < 0.001）。此外，干预组中照顾者负担的平均得分从干预前到干预后显著降低，自我效能感显著提高（p < 0.001）。同时，对照组无显著差异。并且，自我效能感与照顾者负担之间存在显著的负相关（r = 0.678，P < 0.001）。
基于健全心灵模式的精神关怀项目可提高白血病患儿母亲的自我效能感，并减轻照顾者的负担。建议采用该模式来满足白血病患儿母亲的精神需求，并指导医疗专业人员在临床实践中制定精神与康复关怀项目。
IRCT202104100·50924N1 注册日期2021年5月4日。
