Van Denend Toni, Gecht-Silver Maureen, Kish Jacqueline, Plow Matthew, Preissner Katharine
Department of Occupational Therapy, University of Illinois Chicago, Chicago, IL, USA.
Department of Family and Community Medicine, University of Illinois Chicago, Chicago, IL, USA.
Br J Occup Ther. 2023 Jun;86(6):441-450. doi: 10.1177/03080226231154459. Epub 2023 Apr 21.
Fatigue is one of the most common symptoms experienced by people with multiple sclerosis (MS) and can have a significant negative impact on participation in valued roles and activities. Understanding and supporting the management of MS fatigue is a priority to promote participation in life roles. This study explored how participants with MS who were enrolled in a fatigue management randomized clinical trial describe and explain their fatigue experience using a secondary qualitative analysis of interventionists' treatment notes.
Clinical documentation including the subjective and objective portions of 85 treatment notes were collected and analyzed using a qualitative research design with multiphase coding.
Four major themes were identified including Fatigue Nature, Struggle, and Responding to the Reality of Fatigue with an overarching identified theme of Impact on Participation. Under the major themes, subthemes (11 total) were also identified and provided nuanced detail into each theme.
People with MS fatigue describe their experience in a variety of ways. Findings will support occupational therapy practitioners to enhance empathy, understanding, and collaboration when working with clients with MS fatigue.
疲劳是多发性硬化症（MS）患者最常见的症状之一，会对参与有价值的角色和活动产生重大负面影响。了解并支持对MS疲劳的管理是促进参与生活角色的首要任务。本研究通过对干预者治疗记录的二次定性分析，探讨了参与疲劳管理随机临床试验的MS患者如何描述和解释他们的疲劳经历。
收集了包括85份治疗记录的主观和客观部分在内的临床文档，并采用多阶段编码的定性研究设计进行分析。
确定了四个主要主题，包括疲劳本质、挣扎以及应对疲劳现实，总体确定的主题是对参与的影响。在主要主题下，还确定了子主题（共11个），并为每个主题提供了细微差别细节。
MS疲劳患者以多种方式描述他们的经历。研究结果将支持职业治疗从业者在与MS疲劳患者合作时增强同理心、理解和协作。
