Mulligan Hilda, Wilkinson Amanda, Snowdon Jessie
Centre for Health, Activity, and Rehabilitation Research, School of Physiotherapy, University of Otago, Dunedin, New Zealand (HM, AW); and Multiple Sclerosis and Parkinson's Society of Canterbury Inc, Christchurch, New Zealand (JS).
Int J MS Care. 2016 Jan-Feb;18(1):27-32. doi: 10.7224/1537-2073.2014-110.
Fatigue in multiple sclerosis (MS) is reported to be one of its most debilitating symptoms, affecting personal, family, and community participation. Despite a high incidence of MS in New Zealand, there was no cohesive approach to support people with MS to manage their fatigue. This prompted the development of Minimise Fatigue, Maximise Life: Creating Balance with Multiple Sclerosis (MFML), a group-based, 6-week fatigue self-management program. This study explored the perceived impact of MFML for participants who attended the program.
We undertook semistructured individual telephone interviews 1 (n = 23) and 3 (n = 11) months after delivery of the program. Data were analyzed for themes.
Two themes emerged from the data: achieving behavior change to manage fatigue and whole of life effects. These themes represent participants' perceived benefits of the program.
This study provides evidence that the MFML fatigue self-management program positively affected the lives of participants. The findings suggest that participants had begun to successfully develop and integrate self-management skills into their everyday lives. This affected the individual personally and also their participation in family and community life. This study adds to the current knowledge and understanding of the positive effect that delivery of a fatigue self-management intervention can have for people with MS.
据报道，多发性硬化症（MS）中的疲劳是最使人衰弱的症状之一，会影响个人、家庭及社区参与。尽管新西兰MS的发病率很高，但对于支持MS患者管理疲劳却没有统一的方法。这促使了“减轻疲劳，最大化生活：与多发性硬化症保持平衡”（MFML）项目的开展，这是一个为期6周的基于小组的疲劳自我管理项目。本研究探讨了MFML项目对参加该项目的参与者的感知影响。
在项目实施后的1个月（n = 23）和3个月（n = 11），我们进行了半结构化的个人电话访谈。对数据进行了主题分析。
数据中出现了两个主题：实现行为改变以管理疲劳和对整个生活的影响。这些主题代表了参与者对该项目的感知益处。
本研究提供了证据，表明MFML疲劳自我管理项目对参与者的生活产生了积极影响。研究结果表明，参与者已开始成功培养自我管理技能并将其融入日常生活。这对个人产生了影响，也影响了他们参与家庭和社区生活。本研究增加了当前对疲劳自我管理干预措施可为MS患者带来积极影响的认识和理解。
