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将治疗带回家:探索家长对发育协调障碍儿童远程医疗的体验。

Bringing therapy home: Exploring parents' experiences of telehealth for children with developmental coordination disorder.

作者信息

Bourke Aisling, O'Connor Una, Boyle Bryan, Kennedy Jessica, Lynch Helen

机构信息

Department of Occupational Therapy, College of Medicine and Health, University College Cork, Cork, Ireland.

出版信息

Br J Occup Ther. 2023 Oct;86(10):714-722. doi: 10.1177/03080226231181018. Epub 2023 Jul 14.

DOI:10.1177/03080226231181018
PMID:40337195
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12033848/
Abstract

INTRODUCTION

Developmental coordination disorder (DCD) significantly impacts a child's motor skills and ability to learn and perform self-care and academic tasks. Telehealth is a rapidly emerging service delivery model, ensuring expanded access to services and continuity of care. Many benefits to the use of telehealth have been identified; yet, there is a dearth of published evidence available on the experiences of parents of children with DCD.

AIM

The aim of this study was to explore parents' experiences of implementing a telehealth motor skills programme for their child with DCD.

METHOD

This study utilised a qualitative descriptive approach to best capture parents' experiences of a telehealth programme. Data were collected through in-depth, semi-structured interviews with eight participants and analysed using thematic analysis. Measures to ensure the trustworthiness of the study were observed within the naturalistic paradigm comprising criteria of credibility, transferability, dependability and confirmability.

FINDINGS

This study uncovered three major themes: (1) Parents in the dark, (2) telehealth in the family and (3) telehealth: what success looks like. Ten further subthemes highlighted the factors for success and parents' considerations for future service delivery.

CONCLUSION

Challenges for parents in accessing traditional occupational therapy services present an opportunity to explore alternative means of delivery such as telehealth. Parents, however, are clear in their preference for a blended approach for future services.

摘要

引言

发育性协调障碍(DCD)严重影响儿童的运动技能以及学习和进行自我护理及学业任务的能力。远程医疗是一种迅速兴起的服务提供模式,可确保扩大服务获取范围并实现护理的连续性。人们已经确定了使用远程医疗的诸多益处;然而,关于DCD患儿家长经历的已发表证据却很匮乏。

目的

本研究的目的是探索家长为患有DCD的孩子实施远程医疗运动技能项目的经历。

方法

本研究采用定性描述方法,以最佳方式捕捉家长对远程医疗项目的体验。通过对八名参与者进行深入的半结构化访谈收集数据,并使用主题分析法进行分析。在自然主义范式内,遵循包括可信度、可转移性、可靠性和可确证性标准在内的措施,以确保研究的可信度。

结果

本研究发现了三个主要主题:(1)蒙在鼓里的家长,(2)家庭中的远程医疗,(3)远程医疗:成功的样子。另外十个子主题突出了成功的因素以及家长对未来服务提供的考量。

结论

家长在获取传统职业治疗服务方面面临的挑战为探索如远程医疗等替代服务提供方式创造了机会。然而,家长明确表示倾向于未来服务采用混合模式。

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本文引用的文献

1
Developmental Coordination Disorder and Most Prevalent Comorbidities: A Narrative Review.发育性协调障碍及最常见的共病:一项叙述性综述
Children (Basel). 2022 Jul 21;9(7):1095. doi: 10.3390/children9071095.
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Teletherapy for children with developmental disorders during the COVID-19 pandemic in the Philippines: A mixed-methods evaluation from the perspectives of parents and therapists.菲律宾 COVID-19 大流行期间发育障碍儿童的远程治疗:来自家长和治疗师视角的混合方法评估。
Child Care Health Dev. 2022 Nov;48(6):963-969. doi: 10.1111/cch.12965. Epub 2022 Jan 20.
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Rethinking early intervention rehabilitation services for children with motor difficulties: engaging stakeholders in the conceptualization of telerehabilitation primary care.重新思考有运动障碍儿童的早期干预康复服务:让利益相关者参与远程康复初级保健的概念化。
Disabil Rehabil. 2022 Nov;44(22):6749-6758. doi: 10.1080/09638288.2021.1972173. Epub 2021 Sep 2.
4
Let's not go back to 'normal'! lessons from COVID-19 for professionals working in childhood disability.让我们不要回归“正常”!新冠疫情给从事儿童残疾工作的专业人员带来的教训。
Disabil Rehabil. 2021 Apr;43(7):1022-1028. doi: 10.1080/09638288.2020.1862925. Epub 2020 Dec 23.
5
Was a global pandemic needed to adopt the use of telehealth in occupational therapy?是否需要一场全球大流行病才能使职业治疗采用远程医疗?
Work. 2021;68(1):13-20. doi: 10.3233/WOR-205268.
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Pediatric Teleheath: Opportunities Created by the COVID-19 and Suggestions to Sustain Its Use to Support Families of Children with Disabilities.儿科远程医疗:COVID-19 带来的机遇及为支持残疾儿童家庭而持续使用的建议。
Phys Occup Ther Pediatr. 2021;41(1):1-17. doi: 10.1080/01942638.2020.1825032. Epub 2020 Oct 6.
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COVID-19 Pandemic: Is This a Good Time for Implementation of Home Programs for Children's Rehabilitation in Low- and Middle-Income Countries?新冠疫情:这是低收入和中等收入国家实施儿童康复家庭项目的好时机吗?
Phys Occup Ther Pediatr. 2020;40(4):361-364. doi: 10.1080/01942638.2020.1759947. Epub 2020 May 14.
8
Report on the Use of Telehealth in Early Intervention in Colorado: Strengths and Challenges with Telehealth as a Service Delivery Method.科罗拉多州早期干预中远程医疗使用情况报告:作为一种服务提供方式的远程医疗的优势与挑战
Int J Telerehabil. 2019 Jun 12;11(1):33-40. doi: 10.5195/ijt.2019.6273. eCollection 2019 Spring.
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Parent Perspectives of an Occupational Therapy Telehealth Intervention.职业治疗远程医疗干预的家长观点
Int J Telerehabil. 2019 Jun 12;11(1):15-22. doi: 10.5195/ijt.2019.6274. eCollection 2019 Spring.
10
International clinical practice recommendations on the definition, diagnosis, assessment, intervention, and psychosocial aspects of developmental coordination disorder.国际临床实践建议:发育性协调障碍的定义、诊断、评估、干预和心理社会方面。
Dev Med Child Neurol. 2019 Mar;61(3):242-285. doi: 10.1111/dmcn.14132. Epub 2019 Jan 22.