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家长在视频教程随机临床试验中的低参与度:一项定性研究。

Low Parental Participation in a Randomised Clinical Trial of Video Tutorials: A Qualitative Study.

作者信息

Borch-Johnsen Liv, Folke Fredrik, Frederiksen Marianne Sjølin, Greisen Gorm, Lund Stine, Zoffmann Vibeke, Gren Caroline, Tjørnhøj-Thomsen Tine, Cortes Dina

机构信息

Department of Pediatrics and Adolescent Medicine, Copenhagen University Hospital-Amager and Hvidovre, Copenhagen, Denmark.

Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.

出版信息

Acta Paediatr. 2025 Sep;114(9):2357-2366. doi: 10.1111/apa.70120. Epub 2025 May 9.

Abstract

AIM

Parents calling a Danish out-of-hours nonurgent medical helpline were invited to a trial comparing video tutorials on managing children's acute illnesses with telephone triage by health professionals. Participants allocated to videos were disconnected from the helpline. Facing only 6% participation, this study explored barriers to engagement and the participants' experiences.

METHODS

We conducted 39 semistructured interviews (25 nonparticipants, 14 participants who watched videos) and applied Clarke and Braun's thematic analysis.

RESULTS

We identified five themes: (1) initial response: annoyance and anger; (2) participation barriers: urgency and ambiguity; (3) participation facilitators: efficiency and resources; (4) video tutorials: confidence and reassurance; and (5) accessing video: timing of information. Parents who declined found their child's condition too urgent for a video-based intervention, doubted the videos' relevance to their situation, preferred individualised care and opposed the automatic call disconnection since the callback option would delay telephone triage. In contrast, participants found the videos time-efficient, calming and empowering.

CONCLUSION

The study design hindered participation. Future studies should address relevance and benefits, such as time efficiency, to improve parental engagement. Longitudinal studies are needed to evaluate the long-term impact of the videos on parental healthcare-seeking behaviour and explore global potential.

摘要

目的

邀请拨打丹麦非工作时间非紧急医疗求助热线的家长参加一项试验,该试验比较关于处理儿童急性疾病的视频教程与专业医护人员电话分诊的效果。被分配观看视频的参与者会被切断与求助热线的连接。鉴于参与率仅为6%,本研究探讨了参与的障碍以及参与者的体验。

方法

我们进行了39次半结构化访谈(25名未参与者,14名观看视频的参与者),并应用了克拉克和布劳恩的主题分析法。

结果

我们确定了五个主题:(1)初始反应:烦恼和愤怒;(2)参与障碍:紧迫性和模糊性;(3)参与促进因素:效率和资源;(4)视频教程:信心和安心;(5)获取视频:信息的时机。拒绝的家长认为孩子的病情太紧急,不适合基于视频的干预,怀疑视频与他们情况的相关性,更喜欢个性化护理,并反对自动切断通话,因为回拨选项会延迟电话分诊。相比之下,参与者认为视频节省时间、让人平静且增强信心。

结论

研究设计阻碍了参与。未来的研究应关注相关性和益处,如时间效率,以提高家长的参与度。需要进行纵向研究来评估视频对家长寻求医疗行为的长期影响,并探索其全球潜力。

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