患有脑瘫儿童的家长参加以接纳与承诺疗法为基础的在线育儿课程的经历。
Experiences of Parents of Children With Cerebral Palsy Participating in an Online Parenting Course Grounded in Acceptance and Commitment Therapy.
作者信息
Whittingham Koa, Crandon Tara, Mak Catherine, Sheffield Jeanie, Wright Ashleigh, Kirby Grace, Boyd Roslyn N
机构信息
Queensland Cerebral Palsy and Rehabilitation Research Centre, Child Health Research Centre, Faculty of Medicine, The University of Queensland, Brisbane, Australia.
School of Psychology, The University of Queensland, Brisbane, Australia.
出版信息
Child Care Health Dev. 2025 May;51(3):e70075. doi: 10.1111/cch.70075.
BACKGROUND
To understand the experiences of parents of children with cerebral palsy (CP) participating in an online parenting course grounded in acceptance and commitment therapy (PACT) from an implementation perspective.
METHOD
Fifty-five parents from 50 families of children with CP (GMFCS I = 21, II = 15, III = 8, IV = 8, V = 3) participated in this mixed methods study. Families were drawn from 67 families participating in an RCT of PACT. Parents participated in a qualitative interview and gave additional feedback on 10-point Likert scales and open-ended questions via the course platform. The implementation analysis consisted of a thematic analysis as well as descriptive statistics, t-tests and ANOVAs to examine the impact of child age and motor functioning as potential barriers.
RESULTS
Parents reported that they liked both the ACT content and the online format, and the modules were rated highly in the course feedback (7-9 on 10-point Likert scales). Parents reported positive changes for both them and their child. Parents of younger (2-5 years) children rated the videos from Module One Living a Meaningful Life more highly than parents of older (6-10 years) children. There were no other effects of child age or motor functioning.
CONCLUSION
Overall, parental response to PACT was positive, and child age and motor functioning level were not barriers. The online format of the programme and ACT content were well suited to the needs of this population. In particular, the ACT components of values and mindfulness were found to be particularly relevant. Implementation should focus on understanding that ACT can be psychologically challenging, ensuring that parents who need individualised support for intervention adaptation receive it, providing good support to address technological difficulties and building effective reminders into the intervention protocol.
TRIAL REGISTRATION
Australian New Zealand Clinical Trials Registry: ACTRN12616000351415.
背景
从实施角度了解脑瘫（CP）患儿家长参与以接纳与承诺疗法（PACT）为基础的在线育儿课程的体验。
方法
来自50个脑瘫患儿家庭的55位家长（GMFCS I级 = 21人，II级 = 15人，III级 = 8人，IV级 = 8人，V级 = 3人）参与了这项混合方法研究。这些家庭来自参与PACT随机对照试验的67个家庭。家长参与了定性访谈，并通过课程平台就10分制李克特量表和开放式问题给出了额外反馈。实施分析包括主题分析以及描述性统计、t检验和方差分析，以检验儿童年龄和运动功能作为潜在障碍的影响。
结果
家长表示他们喜欢ACT内容和在线形式，这些模块在课程反馈中获得了很高的评分（10分制李克特量表上为7 - 9分）。家长报告说他们自己和孩子都有积极的变化。年龄较小（2 - 5岁）孩子的家长对模块一“过有意义的生活”中的视频评分高于年龄较大（6 - 10岁）孩子的家长。儿童年龄或运动功能没有其他影响。
结论
总体而言，家长对PACT的反应是积极的，儿童年龄和运动功能水平不是障碍。该项目的在线形式和ACT内容非常适合这一人群的需求。特别是，价值观和正念的ACT成分被认为特别相关。实施应侧重于理解ACT在心理上可能具有挑战性，确保需要个性化支持以适应干预的家长得到支持，提供良好的支持以解决技术困难，并在干预方案中设置有效的提醒。
试验注册
澳大利亚新西兰临床试验注册中心：ACTRN12616000351415。
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