Simblett Sara Katherine, O'Donoghue Daniel, Carraro Maya, Tazrin Syeda, Erturk Sinan, Wieczorek Ania, Dowling Daniel, Jamieson-Craig Rebekah, Fish Jessica, Easton Ava, Ling John, Symeon Christopher, Harrison Simon, Wykes Til
Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
Barts Health NHS Trust, London, UK.
Neuropsychol Rehabil. 2025 May 14:1-19. doi: 10.1080/09602011.2025.2491744.
Research on health-technology for people with acquired brain injury (ABI) is evolving rapidly and accelerated during the COVID-19 pandemic. But there is little information on what ABI stakeholders want from this research. We conducted a mixed methods study using an online survey with data collected twice, before and during, the COVID-19 pandemic. Participants were 18 + from three self-identified stakeholder groups: (1) people with ABI, (2) ABI carers, and (3) ABI healthcare professionals. There were 252 participants (55.8%) before the COVID-19 pandemic and 200 (44.2%) during the COVID-19 pandemic. Half (49.3%, n = 223) were healthcare professionals, one third (33.6%, n = 152) people with ABI, and the remainder (17.0%, n = 77) carers. Most had experience with technology (97.8%, n = 224) and acknowledged its value in supporting mental health. Nine key research priorities were identified pre-pandemic, spanning innovative technologies for specific purposes (aiding cognition, managing emotions, accessing support groups, and gaining information), and general barriers and facilitators to using technology. These themes were also present during the COVID-19 pandemic. However, the second cohort were less enthusiastic about, and some (medics, physiotherapists, and social workers) were less willing to use technology to support mental health, highlighting challenges that were not previously apparent.
针对后天性脑损伤（ABI）患者的健康技术研究正在迅速发展，并在新冠疫情期间加速推进。但关于ABI利益相关者对这项研究的期望，几乎没有相关信息。我们开展了一项混合方法研究，通过在线调查在新冠疫情之前和期间收集了两次数据。参与者为来自三个自我认定的利益相关者群体的18岁及以上人群：（1）ABI患者，（2）ABI患者的护理人员，以及（3）ABI医疗保健专业人员。在新冠疫情之前有252名参与者（55.8%），在新冠疫情期间有200名（44.2%）。其中一半（49.3%，n = 223）是医疗保健专业人员，三分之一（33.6%，n = 152）是ABI患者，其余（17.0%，n = 77）是护理人员。大多数人有技术使用经验（97.8%，n = 224），并认可其在支持心理健康方面的价值。在疫情之前确定了九个关键研究重点，涵盖用于特定目的的创新技术（辅助认知、管理情绪、加入支持小组和获取信息）以及使用技术的一般障碍和促进因素。这些主题在新冠疫情期间也存在。然而，第二批参与者对技术的热情较低，一些人（医生、物理治疗师和社会工作者）不太愿意使用技术来支持心理健康，这凸显了之前不明显的挑战。
