Barakou Ioulia, Hackett Katie L, Hettinga Florentina J, Finch Tracy
Department of Nursing, Midwifery & Health, Northumbria University, Newcastle upon Tyne, United Kingdom.
Department of Sport, Exercise and Rehabilitation, Northumbria University, Newcastle upon Tyne, United Kingdom.
Disabil Rehabil. 2025 May 16:1-11. doi: 10.1080/09638288.2025.2500066.
Activity pacing is multidimensional and promising for fatigue management and quality of life in chronic conditions. There is a need to develop activity pacing interventions involving healthcare professionals' views on fatigue management and activity pacing. This study explored healthcare professionals' perspectives on activity pacing and its role in fatigue management for individuals with chronic conditions.
Three focus groups and two semi-structured interviews were conducted with ten healthcare professionals. They were audio-recorded, transcribed verbatim, and analyzed using reflexive thematic inductive analysis.
Participants described activity pacing as complex. They highlighted barriers experienced by adults with chronic conditions, including fear of overexertion, reluctance disclosing their condition, and lack of understanding their fatigue. Participants underscored the importance of a tailored, holistic activity pacing approach. They viewed activity pacing as essential for improving the quality of life in chronic conditions and discussed physical activity engagement as a strategy to enhance fatigue management.
Findings from this study underscore the complexities of activity pacing in chronic conditions and offer insights to inform the development of more effective interventions. Healthcare professionals' perspectives highlight the need to address both practical and psychological aspects of fatigue management through individualized and holistic approaches.
活动节奏安排具有多维度特点，对慢性病患者的疲劳管理和生活质量改善很有前景。有必要开发包含医疗保健专业人员对疲劳管理和活动节奏安排看法的活动节奏安排干预措施。本研究探讨了医疗保健专业人员对活动节奏安排及其在慢性病患者疲劳管理中作用的看法。
对10名医疗保健专业人员进行了3次焦点小组讨论和2次半结构化访谈。对讨论和访谈进行了录音，逐字转录，并采用反思性主题归纳分析法进行分析。
参与者将活动节奏安排描述为复杂的。他们强调了慢性病成年人所经历的障碍，包括害怕过度劳累、不愿透露病情以及对自身疲劳缺乏了解。参与者强调了量身定制的整体活动节奏安排方法的重要性。他们认为活动节奏安排对于改善慢性病患者的生活质量至关重要，并讨论了身体活动参与作为增强疲劳管理的一种策略。
本研究结果强调了慢性病患者活动节奏安排的复杂性，并为开发更有效的干预措施提供了见解。医疗保健专业人员的观点突出了通过个性化和整体方法解决疲劳管理的实际和心理方面问题的必要性。
