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青光眼患者对自我管理有效指导的看法。

Glaucoma Patient Perspectives on Effective Coaching for Self-Management.

作者信息

Carey Noah L, DuPuis Danielle T, Lin George, Flores Elena, Mitchell Jamie, Darnley-Fisch Deborah, Imami Nauman, Heisler Michele, Resnicow Kenneth, McHaney-Conner Phalatha, Priester Asia, MacKenzie Chamisa, Newman-Casey Paula-Anne

机构信息

Department of Ophthalmology and Visual Sciences.

Institute for Social Research.

出版信息

J Glaucoma. 2025 Sep 1;34(9):719-727. doi: 10.1097/IJG.0000000000002593. Epub 2025 May 20.

DOI:10.1097/IJG.0000000000002593
PMID:40387429
Abstract

PRCIS

In semistructured exit interviews, participants in a personalized glaucoma coaching program reported improved self-efficacy in managing their disease. Coaching was frequently cited as catalyst to enhancing medication adherence, emphasizing its role in team-based care.

PURPOSE

To assess patients' experience with coaching to motivate improved adherence to glaucoma self-management.

METHODS AND MATERIALS

Participants in the Support, Educate, Empower (SEE) personalized glaucoma coaching program completed exit interviews after participating in a 6-month coaching program. Interviews were audio-recorded and transcribed verbatim. Transcripts were analyzed using interpretivist grounded theory. Thematic saturation was reached after coding 30 interviews; 32 were included. Themes were identified, a codebook was generated, and 2 researchers coded the transcripts (NLC, DTD) and a third adjudicated any disagreements (EF). Main outcomes measures were defined as themes and the number of participants who expressed a theme.

RESULTS

Of the 32 participants interviewed in this study, 59% (n=19) identified as male, 41% (n=13) identified as female, 50% (n=16) identified as Black, 34% (n=11) identified as White, and 6% (n=2) identified as Asian. Major themes surrounding coaching included how coaching promoted change in eye drop use, knowledge learned from the coach, feeling accountable to the coach, the coach being accessible, how coaches demonstrated empathy, how the coach collaborated to help people develop a sense of control and efficacy over glaucoma self-management, and how coaches built rapport. Additional themes were program satisfaction, fear of vision loss as a motivator to improve glaucoma self-management, and constructive feedback for the program.

CONCLUSION

This qualitative assessment of the SEE personalized glaucoma coaching program demonstrated that high-quality coaching and rapport building may help patients with previously low medication adherence feel more motivated and in control of their glaucoma.

摘要

PRCIS

在半结构化的离职访谈中,参与个性化青光眼指导项目的参与者报告称,他们在疾病管理方面的自我效能有所提高。指导经常被视为提高药物依从性的催化剂,强调了其在团队式护理中的作用。

目的

评估患者接受指导以促进更好地坚持青光眼自我管理的体验。

方法和材料

参与支持、教育、赋能(SEE)个性化青光眼指导项目的参与者在参加为期6个月的指导项目后完成了离职访谈。访谈进行了录音并逐字转录。使用解释主义扎根理论对转录文本进行分析。在对30次访谈进行编码后达到了主题饱和;共纳入32次访谈。确定了主题,生成了编码手册,两名研究人员对转录文本进行编码(NLC、DTD),第三名研究人员对任何分歧进行裁决(EF)。主要结局指标定义为主题以及表达某一主题的参与者数量。

结果

在本研究中接受访谈的32名参与者中,59%(n = 19)为男性,41%(n = 13)为女性,50%(n = 16)为黑人,34%(n = 11)为白人,6%(n = 2)为亚洲人。围绕指导的主要主题包括指导如何促进眼药水使用的改变、从指导者那里学到的知识、对指导者负责的感觉、指导者易于联系、指导者如何表现出同理心、指导者如何合作帮助人们培养对青光眼自我管理的控制感和效能感,以及指导者如何建立融洽关系。其他主题包括项目满意度、对视力丧失的恐惧作为改善青光眼自我管理的动力,以及对该项目的建设性反馈。

结论

对SEE个性化青光眼指导项目的这项定性评估表明,高质量的指导和融洽关系的建立可能有助于以前药物依从性较低的患者更有动力并更好地控制其青光眼。

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