PFAPA综合征患儿的生活质量和心理功能
Quality of Life and Psychological Functioning in Children with PFAPA Syndrome.
作者信息
García-Soto Xosé Ramón, Villanueva-Alameda Maria Isabel, Fernández-Solana Jessica, González-Bernal Jerónimo J, Bernal-Jiménez Arancha, Santos-Martín Lara, García-Mellado Juan, Calvo-Simal Sara, Vélez-Santamaría Rodrigo
机构信息
Clinical Psychology, University Hospital of Burgos, 09006 Burgos, Spain.
Department of Health Sciences, University of Burgos, 09001 Burgos, Spain.
出版信息
Pediatr Rep. 2025 Apr 22;17(3):51. doi: 10.3390/pediatric17030051.
BACKGROUND/OBJECTIVES: This study analyzes the impact of PFAPA syndrome (periodic fever, aphthous stomatitis, pharyngitis, and adenitis) on health-related quality of life (HRQoL) and the psychological functioning of children and adolescents aged 2 to 1 years.
METHODS
A cross-sectional descriptive study was conducted with 62 participants (31 males and 31 females) diagnosed with PFAPA. The Strengths and Difficulties Questionnaire (SDQ) and the Family Impact Module scale of Pediatric Quality of Life Inventory (PedsQL) were used to assess psychological functioning and HRQoL, respectively.
RESULTS
Participants exhibited predominantly low HRQoL, particularly in physical health and emotional functioning. School functioning was also affected. However, social functioning and family relationships showed more favorable scores. A positive correlation was observed between age and emotional symptoms. Family concern was the most significantly impacted aspect.
CONCLUSIONS
PFAPA syndrome has a significant impact on the HRQoL of affected children and adolescents, particularly in physical and emotional aspects. A holistic approach is necessary for disease management, considering not only physical symptoms but also psychosocial and academic factors, as well as the impact on the family.
背景/目的：本研究分析周期性发热、口疮性口炎、咽炎和腺炎综合征（PFAPA综合征）对2至11岁儿童及青少年的健康相关生活质量（HRQoL）以及心理功能的影响。
方法
对62名被诊断为PFAPA综合征的参与者（31名男性和31名女性）进行了一项横断面描述性研究。分别使用长处与困难问卷（SDQ）和儿童生活质量量表（PedsQL）的家庭影响模块来评估心理功能和HRQoL。
结果
参与者的HRQoL大多较低，尤其是在身体健康和情绪功能方面。学校功能也受到了影响。然而，社交功能和家庭关系得分更为良好。年龄与情绪症状之间存在正相关。家庭关注度是受影响最显著的方面。
结论
PFAPA综合征对受影响的儿童及青少年的HRQoL有显著影响，尤其是在身体和情绪方面。疾病管理需要采取整体方法，不仅要考虑身体症状，还要考虑心理社会和学业因素以及对家庭的影响。
Zotero 插件