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挪威痴呆症患者的认知康复:来自一项试点研究的个案管理人员经验

Cognitive Rehabilitation for People with Dementia in Norway: Case Managers' Experiences from a Pilot Study.

作者信息

Mjørud Marit, Michelet Mona, Krohne Kariann, Bredholt Thea Cathrine, Evans Suzannah, Clare Linda

机构信息

Department of Geriatric Medicine, Oslo University Hospital, Oslo, Norway.

Norwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.

出版信息

Dement Geriatr Cogn Dis Extra. 2025 Apr 15;15(1):69-77. doi: 10.1159/000545838. eCollection 2025 Jan-Dec.

DOI:10.1159/000545838
PMID:40416604
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12101815/
Abstract

INTRODUCTION

People with dementia are eligible for rehabilitation for functional difficulties resulting from cognitive symptoms, but no method for this is used in Norwegian municipalities. GREAT cognitive rehabilitation (CR) is an approach which has shown significant positive effects. The study aimed to explore the experiences of dementia case managers using the GREAT CR approach to address the rehabilitation goals of people with dementia.

METHOD

Six dementia case managers, from four Norwegian municipalities, participated. The pilot study had two phases: phase 1: the participants learnt the approach, and each used it with two clients, to become CR practitioners; phase 2: the participants could use CR in their normal practice. Their experiences were explored in two focus groups. The focus groups were audiotaped, transcribed, and analysed in line with directed content analysis.

RESULTS

Three categories were described: (1) the training and written material, (2) professional development, and (3) proposals for solutions on how to use CR in clinical practice. The case managers found it both engaging and challenging to use CR. They observed that the experience had changed their usual practice: they asked people with dementia more questions about their everyday functioning and resources. The most important barrier to implementing CR was lack of time, although funds were provided to allow municipalities to provide cover for participants' time, participants still found they lacked the time to use the approach as planned.

CONCLUSION

This study has demonstrated that it is feasible to implement CR in a Norwegian municipality if enough time is available and sufficient resources are provided. There is an urgent need to identify how healthcare services can be enabled to make rehabilitation methods like CR a regular part of post-diagnostic support.

摘要

引言

患有痴呆症的人因认知症状导致功能困难,有资格接受康复治疗,但挪威各市镇未采用针对此情况的任何方法。GREAT认知康复(CR)是一种已显示出显著积极效果的方法。该研究旨在探索痴呆症个案管理人员使用GREAT CR方法实现痴呆症患者康复目标的经验。

方法

来自挪威四个市镇的六名痴呆症个案管理人员参与了研究。试点研究分为两个阶段:第1阶段:参与者学习该方法,并分别与两名客户使用该方法,成为CR从业者;第2阶段:参与者可在正常工作中使用CR。通过两个焦点小组探讨了他们的经验。焦点小组进行了录音、转录,并根据定向内容分析法进行了分析。

结果

描述了三个类别:(1)培训和书面材料,(2)专业发展,(3)关于如何在临床实践中使用CR的解决方案建议。个案管理人员发现使用CR既有趣又具有挑战性。他们观察到这种经历改变了他们的日常工作:他们向痴呆症患者询问了更多关于其日常功能和资源的问题。实施CR的最重要障碍是时间不足,尽管提供了资金以使市镇能够为参与者的时间提供保障,但参与者仍然发现他们没有时间按计划使用该方法。

结论

本研究表明,如果有足够的时间并提供足够的资源,在挪威的一个市镇实施CR是可行的。迫切需要确定如何使医疗保健服务能够将CR等康复方法作为诊断后支持的常规组成部分。

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Embracing Reablement as an Essential Support Approach for Dementia Care in the 21 Century: A Position Paper.将重新适应能力作为21世纪痴呆症护理的一种基本支持方法:一份立场文件。
J Multidiscip Healthc. 2024 Nov 25;17:5583-5591. doi: 10.2147/JMDH.S484069. eCollection 2024.
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Donanemab in Early Symptomatic Alzheimer Disease: The TRAILBLAZER-ALZ 2 Randomized Clinical Trial.多奈哌齐治疗早期症状性阿尔茨海默病的随机临床试验。
JAMA. 2023 Aug 8;330(6):512-527. doi: 10.1001/jama.2023.13239.
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Cognitive rehabilitation for people with mild to moderate dementia.轻度至中度痴呆患者的认知康复。
Cochrane Database Syst Rev. 2023 Jun 29;6(6):CD013388. doi: 10.1002/14651858.CD013388.pub2.
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Implementing a home-based personalised cognitive rehabilitation intervention for people with mild-to-moderate dementia: GREAT into Practice.实施基于家庭的个性化认知康复干预,用于治疗轻度至中度痴呆症患者: GREAT 付诸实践。
BMC Geriatr. 2023 Feb 13;23(1):93. doi: 10.1186/s12877-022-03705-0.
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Lecanemab in Early Alzheimer's Disease.早期阿尔茨海默病中的lecanemab
N Engl J Med. 2023 Jan 5;388(1):9-21. doi: 10.1056/NEJMoa2212948. Epub 2022 Nov 29.
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'We must have a new VIPS meeting soon!' Barriers and facilitators for implementing the VIPS practice model in primary health care.'我们必须尽快召开新的 VIPS 会议!' 在基层医疗中实施 VIPS 实践模式的障碍和促进因素。
Dementia (London). 2021 Nov;20(8):2649-2667. doi: 10.1177/14713012211007409. Epub 2021 Apr 17.
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The FRAME-IS: a framework for documenting modifications to implementation strategies in healthcare.FRAME-IS:用于记录医疗保健实施策略修改的框架。
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