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针对感染艾滋病毒的老年人的社会文化适宜型基于互联网的老年护理模式:基于经验的协同设计方法。

Socioculturally Appropriate Internet-Based Geriatric Care Model for Older Adults Living With HIV: Experience-Based Co-Design Approach.

作者信息

Kokorelias Kristina M, Wasilewski Marina B, Valentine Dean, Eaton Andrew D, Dove Erica, Brown Paige, McKinlay Stuart, Sheppard Christine L, Su Esther, Singh Hardeep K, Flanagan Ashley, Zhabokritsky Alice, Abdelhalim Reham, Parpia Rabea, Zewude Rahel, Jamieson Laura, Walmsley Sharon, Sirisegaram Luxey

机构信息

Section of Geriatric Medicine, Department of Medicine, Sinai Health System and University Health Network, Toronto, ON, Canada.

Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada.

出版信息

JMIR Aging. 2025 May 27;8:e67122. doi: 10.2196/67122.

Abstract

BACKGROUND

Older adults living with HIV face challenges accessing regular geriatric care, and while virtual care services could offer a solution, they may come with limitations.

OBJECTIVE

This study aimed to co-design a culturally appropriate virtual care model tailored to older adults' needs using the experience-based co-design methodology.

METHODS

We used a qualitative, experience-based co-design approach with 19 older adults living with HIV. The process involved 3 phases: identifying needs through interviews and questionnaires, codeveloping a care model prototype through focus groups and a workshop, and refining the model using feedback from a world café format. Data were analyzed using thematic content analysis.

RESULTS

The co-design process led to a virtual care model prototype that directly addressed participants' key needs. These included personalized communication methods, simplified technology interfaces for easier access, and culturally responsive care practices. Participants emphasized the importance of privacy in virtual consultations, flexible scheduling to accommodate health fluctuations, and ongoing support for managing both HIV and aging-related conditions. Their feedback shaped a model designed to bridge service gaps, offering a more inclusive, accessible, and patient-centered approach to virtual geriatric care.

CONCLUSIONS

This study co-designed a potential virtual geriatric care model grounded in the experiences of older adults living with HIV. By integrating participants' insights throughout the design process, the model offers a promising approach to improving care for this vulnerable population. Future directions for research to test this model are proposed.

摘要

背景

感染艾滋病毒的老年人在获得常规老年护理方面面临挑战,虽然虚拟护理服务可能提供一种解决方案,但它们可能存在局限性。

目的

本研究旨在使用基于经验的协同设计方法,共同设计一种符合文化背景且适合老年人需求的虚拟护理模式。

方法

我们对19名感染艾滋病毒的老年人采用了定性的、基于经验的协同设计方法。该过程包括三个阶段:通过访谈和问卷调查确定需求,通过焦点小组和研讨会共同开发护理模式原型,以及利用世界咖啡馆形式的反馈完善该模式。使用主题内容分析法对数据进行分析。

结果

协同设计过程产生了一个直接满足参与者关键需求的虚拟护理模式原型。这些需求包括个性化的沟通方式、简化的技术界面以便于使用,以及具有文化敏感性的护理实践。参与者强调了虚拟咨询中隐私的重要性、灵活的日程安排以适应健康波动,以及对管理艾滋病毒和与衰老相关疾病的持续支持。他们的反馈形成了一个旨在弥合服务差距的模式,为虚拟老年护理提供了一种更具包容性、可及性和以患者为中心的方法。

结论

本研究基于感染艾滋病毒的老年人的经验共同设计了一个潜在的虚拟老年护理模式。通过在整个设计过程中整合参与者的见解,该模式为改善对这一弱势群体的护理提供了一种有前景的方法。提出了未来测试该模式的研究方向。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e4ce/12152441/a5a72f1bbc12/aging_v8i1e67122_fig1.jpg

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