紧跟血友病诊疗分级体系趋势，提升中国血友病诊疗水平
[Keeping up with the trends and improving the hierarchical system for the diagnosis and treatment of hemophilia in China].
作者信息
Yang R C
机构信息
National Clinical Research Center for Blood Diseases, State Key Laboratory of Experimental Hematology, National Hemophilia Registry Center, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin 300020, China.
出版信息
Zhonghua Xue Ye Xue Za Zhi. 2025 Apr 14;46(4):281-283. doi: 10.3760/cma.j.cn121090-20250108-00017.
As a rare disease, hemophilia is the optimal one for hierarchical diagnosis and treatment. Under the guidance and support of National Health Commission of the People's Republic of China and related organization, Hemophilia Treatment Center Collaborative Network of China has explored the establishment of the hierarchical system for the diagnosis and treatment of hemophilia in China, which contributed to the improvement of hemophilia care in China and in the meantime, shared the experience for other diseases and disciplines.
作为一种罕见病，血友病是分级诊疗的最佳病种之一。在国家卫生健康委员会及相关组织的指导与支持下，中国血友病治疗中心协作网络探索建立了中国血友病分级诊疗体系，这有助于改善中国血友病的照护水平，同时也为其他疾病及学科分享了经验。
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