Maloy Gwyneth C, Kaszuba Stephanie V, Stoeckel Maggie, Mariotti Emily C, Frumberg David B
Department of Orthopaedics & Rehabilitation, Yale School of Medicine, New Haven, CT.
Child Study Center, Yale School of Medicine, New Haven, CT.
J Pediatr Soc North Am. 2024 Feb 12;5(1):640. doi: 10.55275/JPOSNA-2023-640. eCollection 2023 Feb.
Given the increasing prevalence of autism spectrum disorder (ASD), medical professionals' understanding of the presentation of ASD is essential to ensuring patients with ASD receive high-quality healthcare. Previous studies have found that individuals with ASD have a lower average bone density and higher fracture risk than those without ASD, increasing the likelihood that these patients will seek orthopaedic care. Early coordination with the patient's family, identification of stressors and coping strategies, and flexibility during the visit are key to promoting a positive medical encounter. Based on a review of the literature, we present a practical guide for orthopaedic providers to better care for pediatric patients with ASD and their families. •Children with ASD have more successful interfaces with pediatric orthopedists when the visits are tailored to meet their unique needs.•A multidisciplinary team, especially with ASD resources, can improve the experience of surgical admissions.•A phone call by a team member prior to an outpatient visit is an efficient way to ensure all of a child's needs will be met.•Children may have nonverbal communication strategies, including challenges in externalizing pain.
鉴于自闭症谱系障碍（ASD）的患病率不断上升，医学专业人员对ASD表现的了解对于确保ASD患者获得高质量医疗保健至关重要。先前的研究发现，与没有ASD的人相比，患有ASD的人的平均骨密度较低，骨折风险较高，这增加了这些患者寻求骨科护理的可能性。早期与患者家属协调、识别压力源和应对策略以及就诊期间的灵活性是促进积极医疗接触的关键。基于对文献的回顾，我们为骨科医疗服务提供者提供了一份实用指南，以更好地照顾患有ASD的儿科患者及其家庭。
• 当就诊是为满足其独特需求而量身定制时，患有ASD的儿童与儿科骨科医生的沟通会更顺利。
• 多学科团队，尤其是拥有ASD相关资源的团队，可以改善手术入院体验。
• 团队成员在门诊就诊前打个电话是确保满足孩子所有需求的有效方式。
• 儿童可能有非语言沟通策略，包括在表达疼痛方面存在困难。
