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从纳入到赋权:通过与痴呆症患者共同研究促进公平。

From inclusion to empowerment: advancing equity through co-research with people living with dementia.

作者信息

Hung Lillian, Wong Joey, Wong Karen Lok Yi, Ong Emily, Johnson Granville, Rochford-Brennan Helen, Mann Jim, Gierach Lester, Jackson Lynn, Gregorio Mario, Wighton Mary Beth, Fehr Phyllis

机构信息

School of Nursing, University of British Columbia, Vancouver, BC, Canada.

School of Social Work, University of British Columbia, Vancouver, BC, Canada.

出版信息

Front Dement. 2025 May 13;4:1600162. doi: 10.3389/frdem.2025.1600162. eCollection 2025.

Abstract

Too often, people living with dementia are spoken for rather than spoken with. This reflects deeply embedded assumptions/biases about people living with dementia in our society. This article explores the experiences and insights of individuals with dementia, positioning empowerment as a foundational strategy to advance social citizenship and equity. We collaboratively on more than a decade of shared work in research and advocacy. Our collective analysis identifies three key dimensions essential for meaningful empowerment: (a) recognizing strengths and building capacities, (b) equitable leadership, and (c) supportive environments and learning together. Our findings demonstrate that intentional, respectful collaboration produces extensive social, political, and healthcare benefits, actively challenging inequities and fostering a deeper sense of belonging and contribution.

摘要

患有痴呆症的人常常是被他人代言,而非被倾听。这反映了我们社会中对痴呆症患者根深蒂固的假设/偏见。本文探讨了痴呆症患者的经历和见解,将赋权定位为推进社会公民身份和公平的基础策略。我们在研究和宣传方面有着十多年的合作工作。我们的综合分析确定了有意义的赋权所必需的三个关键维度:(a) 认识优势和培养能力,(b) 公平领导,以及 (c) 支持性环境和共同学习。我们的研究结果表明,有意的、相互尊重的合作会产生广泛的社会、政治和医疗效益,积极挑战不平等现象,并培养更深的归属感和贡献感。

相似文献

本文引用的文献

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Empowerment for people living with dementia: An integrative literature review.痴呆症患者赋权:综合文献回顾。
Int J Nurs Stud. 2021 Dec;124:104098. doi: 10.1016/j.ijnurstu.2021.104098. Epub 2021 Sep 30.

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