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支持对自闭症儿童家长的影响:支持、压力与关系满意度之间的关系。

The Impact of Support on Parents of Autistic Children: The Relationships Between Support, Stress, and Relationship Satisfaction.

作者信息

Brennan Justine, Davis Thompson E

机构信息

Department of Psychology, The University of Alabama, Tuscaloosa, AL, USA.

Department of Psychology, Louisiana State University, Baton Rouge, LA, USA.

出版信息

J Autism Dev Disord. 2025 May 30. doi: 10.1007/s10803-025-06870-4.

DOI:10.1007/s10803-025-06870-4
PMID:40442568
Abstract

Increased caregiving demands from raising an autistic child result in reduced social support, increased parenting stress, and decreased relationship satisfaction for their parents. While social support is protective against parental stress and can increase relationship satisfaction, few studies have examined the relationships between the support networks, functions of support (e.g., informational, emotional, and instrumental), and well-being of parents of autistic children. This study surveyed 112 parents (73 mothers and 39 fathers) of autistic children (aged 5-12 years) online to examine the relationships between (1) who was identified as a primary support person (PSP), (2) which functions of support parents perceived from their PSP, (3) how stressed parents reported they were, and (4) how satisfied parents were with their relationship with their PSP. Results indicated parents most frequently identified a friend or family member as their PSP, emotional support was the most frequently identified function of support, and emotional support had the strongest association with relationship satisfaction. The results of this study provide a foundation for future studies on the implications of support networks, functions of perceived support, and stress on the relationship satisfaction of parents of autistic children.

摘要

抚养自闭症儿童带来的照料需求增加,导致父母获得的社会支持减少、育儿压力增大以及对亲子关系的满意度降低。虽然社会支持能抵御父母压力并提升关系满意度,但很少有研究探讨自闭症儿童父母的支持网络、支持功能(如信息、情感和工具性支持)与幸福感之间的关系。本研究对112名自闭症儿童(5至12岁)的父母(73名母亲和39名父亲)进行了在线调查,以考察以下几方面的关系:(1)谁被确定为主要支持人(PSP);(2)父母从其主要支持人那里获得的支持功能有哪些;(3)父母报告的压力程度如何;(4)父母对与主要支持人的关系满意度如何。结果表明,父母最常将朋友或家庭成员确定为主要支持人,情感支持是最常被提及的支持功能,且情感支持与关系满意度的关联最强。本研究结果为未来研究支持网络、感知到的支持功能以及压力对自闭症儿童父母关系满意度的影响奠定了基础。

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本文引用的文献

1
Association between child behavioural problems and parenting stress in autism spectrum disorders: the role of parenting self-efficacy.自闭症谱系障碍中儿童行为问题与养育压力之间的关联:养育自我效能感的作用。
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Child Behavior Problems and Parenting Stress in Underserved Families of Children with ASD: Investigation of Family Resources and Parenting Self-efficacy.自闭症谱系障碍儿童服务欠缺家庭中的儿童行为问题与育儿压力:家庭资源与育儿自我效能的调查
J Autism Dev Disord. 2023 Oct;53(10):3787-3798. doi: 10.1007/s10803-022-05681-1. Epub 2022 Jul 25.
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Romantic attachment and support adequacy in new mothers.
新妈妈的浪漫依恋和支持充足度。
J Soc Psychol. 2024 Jan 2;164(1):112-135. doi: 10.1080/00224545.2021.2006125. Epub 2021 Dec 24.
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How Does Reciprocal Exchange of Social Support Alleviate Individuals' Depression in an Earthquake-Damaged Community?社会支持的互惠交换如何减轻地震灾区个体的抑郁?
Int J Environ Res Public Health. 2021 Feb 8;18(4):1585. doi: 10.3390/ijerph18041585.
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Stress and distress in New Zealand parents caring for a child with autism spectrum disorder.新西兰自闭症谱系障碍儿童父母的压力和困扰
Res Dev Disabil. 2021 Apr;111:103875. doi: 10.1016/j.ridd.2021.103875. Epub 2021 Feb 4.
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The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context.冷眼相待还是寻求慰藉?自闭症谱系障碍儿童父母背景下正式和非正式社会支持的作用机制。
J Autism Dev Disord. 2020 Dec;50(12):4331-4343. doi: 10.1007/s10803-020-04487-3.
7
The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder.自闭症谱系障碍儿童父母社会支持的类型和功能。
J Autism Dev Disord. 2020 Apr;50(4):1337-1352. doi: 10.1007/s10803-019-04359-5.
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Intellectual disability and autism: socioeconomic impacts of informal caring, projected to 2030.智力残疾和自闭症:非正式照护的社会经济影响,预测至 2030 年。
Br J Psychiatry. 2019 Nov;215(5):654-660. doi: 10.1192/bjp.2019.204.
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The REDCap consortium: Building an international community of software platform partners.REDCap 联盟:构建软件平台合作伙伴的国际社区。
J Biomed Inform. 2019 Jul;95:103208. doi: 10.1016/j.jbi.2019.103208. Epub 2019 May 9.
10
Fathers of Youth with Autism Spectrum Disorder: A Systematic Review of the Impact of Fathers' Involvement on Youth, Families, and Intervention.自闭症谱系障碍青年的父亲:父亲参与对青年、家庭和干预影响的系统评价。
Clin Child Fam Psychol Rev. 2019 Dec;22(4):458-477. doi: 10.1007/s10567-019-00294-0.