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临床医生隐瞒坏消息的亲身经历:马来西亚和英国的一项定性研究。

Clinicians' lived experience of concealing bad news: a qualitative study in Malaysia and the UK.

作者信息

Holmes Sophie Nilusha, Forbes Karen, Illing Jan

机构信息

Medical Education, Newcastle University, Newcastle upon Tyne, UK

Palliative Medicine, University of Bristol Medical School, Bristol, UK.

出版信息

BMJ Open. 2025 May 30;15(5):e094589. doi: 10.1136/bmjopen-2024-094589.

Abstract

OBJECTIVE

Clinicians acknowledge that receiving bad news is challenging and life-altering, while recognising that candid communication is needed for effective patient care. In some cultures, patients' relatives commonly ask doctors to hide bad news, with the intention of reducing psychological distress. Although well-intentioned, concealing information has harmful consequences for the patient, their caregivers and the healthcare team. Our study focuses on clinicians' lived experience of this phenomenon. Previous research has provided some exploration of how practitioners navigate this dilemma. Our study aims to deepen understanding, with two goals: improving cultural competence when facing this dilemma and equipping clinicians to navigate this professional challenge.

DESIGN

As this study explored lived experience, we drew on the methodology of phenomenology. To allow deep insight into how clinicians navigate this dilemma, participants took part in focus groups and semistructured interviews. Interviews were audiorecorded, transcribed and analysed using thematic content analysis. The study was strongly influenced by the work of Braun and Clarke, who emphasise the strength in subjectivity in qualitative research. Reporting was guided by the COnsolidated criteria for REporting Qualitative research.

SETTINGS

Recognising that this practice varies significantly across cultures, we recruited clinicians who had experienced a cultural challenge: medical students receiving a UK curriculum in Malaysia and the UK and international medical graduates working in the UK.

PARTICIPANTS

26 medical students and 16 international medical graduates participated.

RESULTS

For our participants, concealing diagnoses created multiple sources of personal distress. Three major themes emerged: moral discomfort, dilemma and powerlessness. Sympathetic distress at the impact on the patient was stark. However, conflicting personal and professional values created uncertainty. Some of our participants shared the relatives' concern that diagnostic disclosure could potentially harm the patient. Even when our participants wanted to disclose diagnoses, they felt underequipped for communication challenges and faced coercion to conceal information, generating a professional dilemma and a sense of powerlessness.

CONCLUSION

The crucial next step is for medical education to acknowledge that requests to conceal diagnoses happen. We need to provide a communication strategy for tackling this phenomenon, which upholds the patient's right to knowledge while maintaining collaboration and trust with the patient's family. Furthermore, this dilemma highlights shortcomings in our current approach to teaching medical ethics. Our findings offer globalised healthcare education an opportunity for self-awareness. Learning from and respecting global variation shines a light on our biases, allowing progress towards curriculum decolonisation.

摘要

目的

临床医生认识到接收坏消息具有挑战性且会改变生活,同时也意识到有效治疗患者需要坦诚沟通。在一些文化中,患者家属通常会要求医生隐瞒坏消息,以期减轻心理痛苦。尽管出发点是好的,但隐瞒信息对患者、其护理人员和医疗团队都会产生有害影响。我们的研究聚焦于临床医生在这一现象中的实际经历。此前的研究对从业者如何应对这一困境进行了一些探索。我们的研究旨在深化理解,有两个目标:面对这一困境时提高文化能力,使临床医生有能力应对这一职业挑战。

设计

由于本研究探索的是实际经历,我们采用了现象学方法。为了深入了解临床医生如何应对这一困境,参与者参加了焦点小组和半结构化访谈。访谈进行了录音、转录,并采用主题内容分析法进行分析。该研究深受布劳恩和克拉克著作的影响,他们强调定性研究中主观性的优势。报告遵循定性研究报告的统一标准。

背景

认识到这种做法在不同文化中差异很大,我们招募了有过文化挑战经历的临床医生:在马来西亚和英国接受英国课程培训的医学生以及在英国工作的国际医学毕业生。

参与者

26名医学生和16名国际医学毕业生参与了研究。

结果

对我们的参与者来说,隐瞒诊断结果造成了多种个人困扰。出现了三个主要主题:道德不适、困境和无力感。对患者所受影响的同情痛苦十分明显。然而,个人和职业价值观的冲突导致了不确定性。我们的一些参与者认同家属的担忧,即透露诊断结果可能会对患者造成潜在伤害。即使我们的参与者想要透露诊断结果,他们也觉得自己缺乏应对沟通挑战的能力,并且面临隐瞒信息的压力,从而产生了职业困境和无力感。

结论

至关重要的下一步是医学教育要承认存在隐瞒诊断结果的要求。我们需要提供一种应对这一现象的沟通策略,既要维护患者的知情权,又要与患者家属保持合作与信任。此外,这一困境凸显了我们当前医学伦理教学方法的不足。我们的研究结果为全球化的医学教育提供了自我认知的机会。从全球差异中学习并尊重这些差异,能让我们认识到自己的偏见,从而推动课程去殖民化进程。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8dd1/12128409/fe6923d6ea0e/bmjopen-15-5-g001.jpg

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