Banfield Michelle, Palmer Victoria J
Australian National University, Canberra, Australian Capital Territory, Australia
The ALIVE National Centre for Mental Health Research Translation, Canberra, Australian Capital Territory, Australia.
BMJ Open. 2025 May 30;15(5):e098557. doi: 10.1136/bmjopen-2024-098557.
The incorporation of lived experience in mental health research has been a challenge for decades, pushing the boundaries of research to focus on the priorities of those most impacted. The people who should be the ultimate beneficiaries of research and its translation hold significant knowledge about both the topics of research and the way it should be respectfully conducted. However, despite policy, funding and most recently publishing directives that purport to support genuine lived experience-focused and -led research, progress remains slow, and debates are frequently still dominated by non-lived experience researchers in positions of power. In this paper, we explore some of the factors we need to consider to genuinely progress in mental health lived experience research, including restrictive and exclusionary thinking on authenticity, the ability to speak from multiple perspectives and the deeply personal intersections of experience in lived experience researcher identities. We then describe the ALIVE National Centre Embedded Lived Experience Research Model and an associated National Strategy for Lived Experience in Mental Health Research as responses to these pervasive issues.
几十年来，将生活经历纳入心理健康研究一直是一项挑战，它推动了研究的边界，使其专注于受影响最大人群的优先事项。那些本应是研究及其转化的最终受益者的人，对研究主题以及应以尊重的方式进行研究的方法都拥有重要的知识。然而，尽管有政策、资金支持，以及最近旨在支持真正以生活经历为重点和主导的研究的出版指令，但进展仍然缓慢，而且辩论往往仍由处于权力地位的非生活经历研究者主导。在本文中，我们探讨了在心理健康生活经历研究中真正取得进展需要考虑的一些因素，包括对真实性的限制性和排他性思维、从多个角度发言的能力，以及生活经历研究者身份中经历的深刻个人交集。然后，我们描述了“ALIVE国家中心嵌入式生活经历研究模型”以及相关的心理健康研究生活经历国家战略，作为对这些普遍问题的回应。
