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“我不应非得向他们的学校普及什么是自闭症”:澳大利亚社区态度及家长对自闭症学生中小学经历的报告

'I shouldn't have to educate their school about what autism is': Community attitudes and parent reports of autistic primary and secondary school experiences in Australia.

作者信息

Thom-Jones Sandra, Gordon Chloe S, Mizzi Simone

机构信息

University of Wollongong, Australia.

Australian Catholic University, Australia.

出版信息

Autism. 2025 May 31;29(10):13623613251338908. doi: 10.1177/13623613251338908.

Abstract

This study aims to understand experiences of inclusion for autistic school students. The study reports on findings from three surveys, one conducted in 2021 with the general population (N = 1983) and two conducted with parents/carers of autistic school students, one in 2020 (N = 2212) and one in 2021 (N = 528). The general population had a favourable attitude towards autistic students receiving supports in school. However, the lived experience of autistic students, as reported on by their parents, highlighted significant gaps in the provision of support. Qualitative data from the 2021 survey with parents of autistic students found that system-level challenges were pervasive, and a lack of inclusion and support caused significant harm to autistic students. Although the perspective is that of the parent rather than the student, this study may provide insight into the experiences of autistic students who otherwise may not engage with traditional research methods. Future research should seek to hear directly from autistic students themselves and to explore case study examples of schools that are excelling in the area of supporting autistic students. These exemplars could be used to advocate for the provision of support in schools and referred to in professional development for school leaders and teachers.Lay abstractThis study explored the experiences of inclusion for autistic students in Australian schools. Our survey in 2021 with the general public (N = 1983) found that people agree that autistic students should receive support in schools. Our surveys with parents of autistic students, one in 2020 (N = 2212) and another in 2021 (N = 528), found many barriers within the school system that make it hard for autistic children to feel included and supported. This lack of support negatively impacts the well-being of autistic children. It is important to note that this study focused on the perspectives of parents, not the students themselves. Future research should identify and learn from schools that are doing a great job supporting autistic students. These examples could be used to advocate for better support for autistic students and to help train educators to be more effective in meeting the needs of these students.

摘要

本研究旨在了解自闭症在校学生的融入体验。该研究报告了三项调查的结果,一项于2021年对普通人群进行(N = 1983),另外两项是对自闭症在校学生的家长/照料者进行的,一项在2020年(N = 2212),另一项在2021年(N = 528)。普通人群对自闭症学生在学校获得支持持积极态度。然而,据家长报告,自闭症学生的实际经历凸显了在提供支持方面存在的重大差距。2021年对自闭症学生家长的调查中的定性数据发现,系统层面的挑战普遍存在,缺乏融入和支持对自闭症学生造成了重大伤害。尽管这一观点是家长的而非学生的,但本研究可能有助于深入了解那些可能无法参与传统研究方法的自闭症学生的经历。未来的研究应设法直接听取自闭症学生自己的意见,并探索在支持自闭症学生方面表现出色的学校的案例。这些范例可用于倡导在学校提供支持,并在学校领导和教师的专业发展中加以引用。

摘要

本研究探讨了澳大利亚学校中自闭症学生的融入体验。我们在2021年对普通公众进行的调查(N = 1983)发现,人们认同自闭症学生应在学校获得支持。我们在2020年(N = 2212)和2021年(N = 528)对自闭症学生家长进行的调查发现,学校系统内存在许多障碍,使自闭症儿童难以感受到被接纳和支持。这种支持的缺乏对自闭症儿童的幸福产生了负面影响。需要注意的是,本研究关注的是家长的观点,而非学生本人。未来的研究应找出并借鉴在支持自闭症学生方面做得很好的学校。这些例子可用于倡导为自闭症学生提供更好的支持,并帮助培训教育工作者更有效地满足这些学生的需求。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0bcb/12417608/28f62fa4be72/10.1177_13623613251338908-fig1.jpg

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