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针对与儿童及其家庭合作的社区志愿者的姑息治疗培训项目:一项范围综述

Palliative care training programmes for community volunteers working with children and their families: a scoping review.

作者信息

Ontrakrai Nattaporn, Bailey Cara, Valler Tracey, Neilson Susan

机构信息

School of Nursing and Midwifery, Institute of Clinical Sciences, University of Birmingham, Birmingham, United Kingdom.

Department of Pediatric Nursing, Faculty of Nursing, Chiang Mai University, Chiang Mai, Thailand.

出版信息

Front Public Health. 2025 May 16;13:1469854. doi: 10.3389/fpubh.2025.1469854. eCollection 2025.


DOI:10.3389/fpubh.2025.1469854
PMID:40453503
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12122434/
Abstract

INTRODUCTION: Volunteers play a significant role in enhancing the quality of palliative care. Training is necessary to deliver voluntary community care that assists healthcare professionals, benefits families and eradicates inequities for underserved populations. Community volunteers form a large part of paediatric palliative care support, but training courses are rarely specific to children leaving volunteers unprepared and unsupported. AIM: To identify existing literature and synthesise knowledge gaps related to volunteer training in community paediatric palliative care. METHOD: This scoping review was guided by Arksey and O'Malley and Levac et al. We conducted searches for published literature on palliative care education published between 2000 and 2023 through comprehensive searches of the Web of Science, CINAHL Plus, MEDLINE, PsycINFO, Scopus, and Cochrane Library databases. RESULTS: In total, 16 (out of 590) articles met the eligibility criteria and were extracted for review. No articles exploring paediatric palliative care training for community volunteers were identified but findings from research with adults suggest that training should be tailored to volunteers' responsibilities, local needs, and culture. Training is varied but volunteers will likely benefit from blended learning that engages with communities. Four predominant domains were identified: public health palliative care education, factors related to developing community volunteers, main topics and training contents, and training models for community volunteers. CONCLUSIONS: Globally, the provision of palliative and end-of-life care is increasingly falling to carers, volunteers, and public health workers. Education is vital to prepare volunteers, improve confidence and offer support. This first scoping review of volunteer training provides much-needed evidence to guide future educational development for the informal workforce and identifies a gap for original research specific to paediatrics.

摘要

引言:志愿者在提高姑息治疗质量方面发挥着重要作用。提供志愿社区护理需要培训,这有助于医护人员,使家庭受益,并消除弱势群体的不公平现象。社区志愿者是儿科姑息治疗支持的重要组成部分,但培训课程很少针对儿童,这使得志愿者缺乏准备且得不到支持。 目的:识别现有文献并综合与社区儿科姑息治疗中志愿者培训相关的知识差距。 方法:本范围综述以阿克西和奥马利以及莱瓦克等人的方法为指导。我们通过全面搜索科学网、CINAHL Plus、MEDLINE、PsycINFO、Scopus和Cochrane图书馆数据库,搜索了2000年至2023年期间发表的关于姑息治疗教育的已发表文献。 结果:总共590篇文章中有16篇符合纳入标准并被提取进行综述。未发现探索针对社区志愿者的儿科姑息治疗培训的文章,但对成年人的研究结果表明,培训应根据志愿者的职责、当地需求和文化进行调整。培训形式多样,但志愿者可能会从与社区互动的混合式学习中受益。确定了四个主要领域:公共卫生姑息治疗教育、与培养社区志愿者相关的因素、主要主题和培训内容以及社区志愿者培训模式。 结论:在全球范围内,姑息和临终护理越来越多地由护理人员、志愿者和公共卫生工作者承担。教育对于让志愿者做好准备、增强信心并提供支持至关重要。这项对志愿者培训的首次范围综述提供了急需的证据,以指导未来针对非正规劳动力的教育发展,并确定了儿科特定原创研究的差距。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d358/12122434/f4cd55ea5ca0/fpubh-13-1469854-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d358/12122434/f4cd55ea5ca0/fpubh-13-1469854-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d358/12122434/f4cd55ea5ca0/fpubh-13-1469854-g0001.jpg

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引用本文的文献

[1]
Key themes and approaches in palliative and end-of-life care education for the general public: a systematic review.

BMC Palliat Care. 2025-8-7

本文引用的文献

[1]
"Palliative care is so much more than that": a qualitative study exploring experiences of hospice staff and bereaved carers during the COVID-19 pandemic.

Front Public Health. 2023

[2]
Palliative Care Curriculum and Training Plan for community health workers.

BMJ Support Palliat Care. 2024-12-19

[3]
The Compassionate Communities Connectors programme: experiences of supported families and referring healthcare providers.

Palliat Care Soc Pract. 2023-5-12

[4]
'The more you give, the better it is for you. You know the reward is greater than the effort': the Compassionate Communities Connectors' experience.

Palliat Care Soc Pract. 2022-11-30

[5]
How compassionate communities are implemented and evaluated in practice: a scoping review.

BMC Palliat Care. 2022-7-20

[6]
Civic engagement in serious illness, death, and loss: A systematic mixed-methods review.

Palliat Med. 2022-4

[7]
What are scoping reviews? Providing a formal definition of scoping reviews as a type of evidence synthesis.

JBI Evid Synth. 2022-4-1

[8]
Children's palliative care education and training: developing an education standard framework and audit.

BMC Med Educ. 2021-10-25

[9]
New public health approaches to palliative care, a brave new horizon or an impractical ideal? An Integrative literature review with thematic synthesis.

Palliat Care Soc Pract. 2021-10-6

[10]
Palliative care education and its effectiveness: a systematic review.

Public Health. 2021-5

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