Seckin Muzeyyen, Tiwana Rumandeep, Fry David, Bailey Cara
Department of Nursing and Midwifery, School of Health Sciences, College of Medicine and Health, University of Birmingham, East Wing, Medical School, Edgbaston, Birmingham, B15 2TT, UK.
NHS Birmingham and Solihull ICB, Birmingham, UK.
BMC Palliat Care. 2025 Aug 7;24(1):219. doi: 10.1186/s12904-025-01852-w.
Families, friends, and communities play a vital role in supporting individuals facing declining health, caregiving duties, loss, or grief, especially with the growing desire to die at home. The general public can significantly impact end-of-life care and offer essential support mechanisms. This review aimed to explore and identify key educational components related to palliative and end-of-life care for citizens, volunteers, and the general public.
A mixed-method systematic review was conducted, incorporating four electronic databases (MEDLINE, PsycINFO, CINAHL, and the Cochrane Library) and grey literature searches, and quality was assessed using Hawker et al.'s (2002) critical appraisal checklists.
Twenty studies published between 2011 and 2023 were included, covering topics in palliative, end-of-life care, and bereavement education. These studies involved a total of 10,307 participants and identified 16 different educational programmes for the public, volunteers, and lay caregivers. The analysis revealed six main themes: foundational concepts and philosophies, communication and decision-making, planning and preparation, symptom management, end-of-life care practices, and caregiving support.
This review highlights the importance of training programmes to improve community involvement in caregiving and enhance the quality of care for individuals with life-limiting conditions. Expanding access to such educational resources can empower more people to contribute confidently to end-of-life care in their communities.
PROSPERO-ID: CRD42024533124.
家庭、朋友和社区在支持面临健康状况下降、护理职责、丧失或悲痛的个人方面发挥着至关重要的作用，尤其是随着人们越来越希望在家中离世。公众可以对临终关怀产生重大影响并提供重要的支持机制。本综述旨在探索和确定与公民、志愿者及普通公众的姑息治疗和临终关怀相关的关键教育内容。
进行了一项混合方法的系统综述，纳入了四个电子数据库（MEDLINE、PsycINFO、CINAHL和Cochrane图书馆）并检索了灰色文献，使用霍克等人（2002年）的批判性评价清单评估质量。
纳入了2011年至2023年间发表的20项研究，涵盖姑息治疗、临终关怀和哀伤教育等主题。这些研究共涉及10307名参与者，并确定了16种针对公众、志愿者和非专业护理人员的不同教育项目。分析揭示了六个主要主题：基础概念和理念、沟通与决策、规划与准备、症状管理、临终关怀实践和护理支持。
本综述强调了培训项目对于提高社区参与护理以及提升对生命有限患者的护理质量的重要性。扩大此类教育资源的获取可以使更多人有信心为其社区的临终关怀做出贡献。
PROSPERO编号：CRD42024533124。
