Lee Su Jung, Jang SolBi, Hong YongEun, Park Hyun Suk, Kim Young Ae
College of Nursing, Institute of Health Science Research and Inje Institute of Hospice & Palliative Care (IHPC), Inje University, 75 Bokji-Ro, Busanjin-Gu, Busan, 47392, Republic of Korea.
Division of Cancer Control & Policy, National Cancer Control Institute, National Cancer Center, 323 Ilsan-Ro, Ilsandong-Gu, Goyang-Si Gyeonggi-Do, 10408, Republic of Korea.
Support Care Cancer. 2025 Jun 2;33(6):525. doi: 10.1007/s00520-025-09557-9.
This study aimed to explore the experiences of cancer patients with a temporary stoma who participated in a home-based healthcare service and to provide data to inform national health system policy development.
This exploratory qualitative study involved 10 cancer patients with temporary stomas (five with rectal cancer, two with colorectal cancer, and three with ovarian cancer) recruited through purposive sampling in South Korea. In-depth, semi-structured online focus group interviews were conducted, and data were analyzed using thematic analysis.
Four main themes were identified from the interview data: (1) adjusting with changes in daily life owing to the presence of a stoma, (2) skill building while participating in the project, (3) the need for a home-based medical care system during transitional care, and (4) the need for support in adapting to an ostomy. These themes included 12 subthemes. The findings highlight the need for ongoing health education and counseling services at a national level to support post-discharge self-care for cancer patients who had undergone ostomy.
Patients with cancer discharged after colostomy surgery require continuous education and practical medical support, suggesting that home-based healthcare services may serve as a valuable alternative to conventional medical care.
本研究旨在探索接受居家医疗服务的癌症临时造口患者的经历，并提供数据以指导国家卫生系统政策的制定。
这项探索性定性研究纳入了10名韩国的癌症临时造口患者（5例直肠癌患者、2例结直肠癌患者和3例卵巢癌患者），通过目的抽样法招募。进行了深入的半结构化在线焦点小组访谈，并使用主题分析法对数据进行分析。
从访谈数据中确定了四个主要主题：（1）因造口的存在而适应日常生活的变化；（2）参与项目过程中的技能培养；（3）过渡护理期间对居家医疗系统的需求；（4）适应造口所需的支持。这些主题包括12个子主题。研究结果强调，在国家层面需要持续的健康教育和咨询服务，以支持接受造口术的癌症患者出院后的自我护理。
结肠造口术后出院的癌症患者需要持续的教育和实际医疗支持，这表明居家医疗服务可能是传统医疗护理的一个有价值的替代方案。
