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用于造口患者管理的居家医疗服务平台的开发。

Development of a home health care service platform for ostomy patient management.

作者信息

Yang Seongwoo, Park Ji Won, Hur Hyuk, Kim Min Jung, Jeong Seung-Yong, Park Kyounghoon, Kim Ik Yong

机构信息

HERINGS, The Institute of Advanced Clinical and Biomedical Research, Seoul, Korea.

Department of Surgery, Seoul National University College of Medicine, Seoul, Korea.

出版信息

Ann Coloproctol. 2024 Feb;40(1):36-43. doi: 10.3393/ac.2022.00360.0051. Epub 2022 Nov 21.

DOI:10.3393/ac.2022.00360.0051
PMID:36404498
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10915528/
Abstract

PURPOSE

The use of an ostomy for urination and defecation leads to reduced quality of life. Although many ostomy management strategies are needed, such strategies are often implemented by patients. Thus, there is a need for a home health care service platform that can be used in ostomy patient management.

METHODS

We developed an ostomy patient management platform by identifying the needs of patients and medical staff through the Chronic Care Ostomy Self-Management Training Program in the United States and from studies conducted in Korea.

RESULTS

The platform encompassed physical management, psychological management, maintenance of social function, spiritual stability, and home medical care. These components were implemented through monitoring, self-care guidance, and a community platform. For the monitoring function, patients entered their health status in a mobile application (app); the medical staff at the affiliated hospital then monitored the stoma status through a web interface.

CONCLUSION

Our platform allows medical staff to monitor ostomy patients through a web interface and help such patients to fully manage their ostomy at home using an app. We expect that the continued development of patient-oriented functions in our app will allow ostomy patients to experience quality-of-life improvements.

摘要

目的

使用造口进行排尿和排便会导致生活质量下降。尽管需要多种造口管理策略,但这些策略通常由患者自行实施。因此,需要一个可用于造口患者管理的家庭医疗服务平台。

方法

我们通过美国慢性护理造口自我管理培训项目以及在韩国开展的研究,确定患者和医护人员的需求,从而开发了一个造口患者管理平台。

结果

该平台涵盖身体管理、心理管理、社会功能维持、精神稳定以及家庭医疗护理。这些组成部分通过监测、自我护理指导和社区平台来实现。对于监测功能,患者在移动应用程序(应用)中输入自身健康状况;附属医院的医护人员随后通过网络界面监测造口状况。

结论

我们的平台使医护人员能够通过网络界面监测造口患者,并帮助此类患者使用应用程序在家中全面管理其造口。我们预计,随着我们应用程序中以患者为导向的功能不断发展,造口患者的生活质量将得到改善。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/75bd/10915528/11ac1341598d/ac-2022-00360-0051f3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/75bd/10915528/047e41d13b0a/ac-2022-00360-0051f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/75bd/10915528/522e4fd95cc3/ac-2022-00360-0051f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/75bd/10915528/11ac1341598d/ac-2022-00360-0051f3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/75bd/10915528/047e41d13b0a/ac-2022-00360-0051f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/75bd/10915528/522e4fd95cc3/ac-2022-00360-0051f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/75bd/10915528/11ac1341598d/ac-2022-00360-0051f3.jpg

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Cancer survivors' greatest challenges of living with an ostomy: findings from the Ostomy Self-Management Telehealth (OSMT) randomized trial.癌症造口患者生活中最大的挑战:来自造口自我管理远程医疗(OSMT)随机试验的结果。
Support Care Cancer. 2022 Feb;30(2):1139-1147. doi: 10.1007/s00520-021-06449-6. Epub 2021 Aug 26.
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