提高针对残疾人的精准医学研究的可信度。
Towards trustworthiness of precision medicine research for people with disabilities.
作者信息
Aguirre Alejandra, Lee Sandra Soo-Jin, Callier Shawneequa, Spicer Paul, Sabatello Maya
机构信息
Department of Medical Humanities and Ethics, Columbia University, New York, NY, USA.
Department of Clinical Research and Leadership, George Washington University School of Medicine and Health Sciences, Washington, DC, USA.
出版信息
Nat Genet. 2025 Jun;57(6):1321-1324. doi: 10.1038/s41588-025-02195-1.
Abstract
People with disabilities are underrepresented in general (i.e., non-disability specific) precision medicine research (PMR), limiting access to its benefits. This commentary examines key reasons for this limited participation, focusing on the role of (dis)trust. We identify areas for further inquiry to guide researchers and enhance the trustworthiness of PMR for people with disabilities.
摘要
在一般（即非特定残疾领域）的精准医学研究（PMR）中，残疾人的参与度不足，这限制了他们从中受益的机会。本评论探讨了导致这种参与受限的关键原因，重点关注（不）信任的作用。我们确定了需要进一步探究的领域，以指导研究人员并提高精准医学研究对残疾人的可信度。
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