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成功应对慢性失语症:运营5年后的成果与项目改进

Living Successfully With Chronic Aphasia: Outcomes and Program Improvement After 5 Years of Operations.

作者信息

Armour Michelle, Brady Susan

机构信息

Northwestern Medicine Marianjoy Rehabilitation Hospital, Wheaton, IL.

Northwestern Medicine Aphasia Center at Marianjoy, Wheaton, IL.

出版信息

Arch Rehabil Res Clin Transl. 2025 Jan 21;7(1):100429. doi: 10.1016/j.arrct.2025.100429. eCollection 2025 Mar.

DOI:10.1016/j.arrct.2025.100429
PMID:40463771
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12128592/
Abstract

OBJECTIVE

To evaluate the durability of quality-of-life outcomes after 5-years of participation in an Aphasia Center program using Life Participation Approach to Aphasia (LPAA) values.

DESIGN

Evidence-based practice quality improvement project.

SETTING

Ambulatory care Aphasia Center part of a larger health care system.

PARTICIPANTS

Participants included 10 clients with aphasia; 2 women and 8 men with a mean age of 66.5 years. All participants had consistent participation in LPAA aphasia center services over a 5-year period (n=10).

INTERVENTIONS

Group programming was provided using the LPAA as the service delivery model.

MAIN OUTCOME MEASURES

Client reported outcome measures were used. The Stroke and Aphasia Quality of Life Scale (SAQOL-39) was administered at 3 time periods: T1, baseline; T2, 1-year participation; and T3, 5-year participation. Program evaluation data were collected via a custom generated, self-reported electronic survey at the 5-year mark.

RESULTS

Outcomes indicated significant differences in self-reported quality-of-life scores from T1 to T2 and T1 to T3. No differences were observed between T2 to T3 for the mean score, physical domain, and communication domain of the SAQOL-39.

CONCLUSIONS

The project provided further support for the use of LPAA values with clients experiencing chronic aphasia.

摘要

目的

运用失语症生活参与方法(LPAA)价值观,评估参与失语症中心项目5年后生活质量结果的持久性。

设计

基于证据的实践质量改进项目。

地点

大型医疗保健系统中的门诊失语症中心。

参与者

参与者包括10名失语症患者;2名女性和8名男性,平均年龄66.5岁。所有参与者在5年期间持续参与LPAA失语症中心服务(n = 10)。

干预措施

采用LPAA作为服务提供模式进行小组规划。

主要结局指标

使用患者报告的结局指标。在三个时间段进行卒中与失语症生活质量量表(SAQOL - 39)评估:T1,基线;T2,参与1年时;T3,参与5年时。在5年节点通过定制生成的自我报告电子调查问卷收集项目评估数据。

结果

结果表明,从T1到T2以及从T1到T3,自我报告的生活质量得分存在显著差异。SAQOL - 39的平均得分、身体领域和沟通领域在T2到T3之间未观察到差异。

结论

该项目为对患有慢性失语症的患者使用LPAA价值观提供了进一步支持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40a6/12128592/41e3f8272c2b/gr3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40a6/12128592/85fa0dd96e8b/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40a6/12128592/f71141169b29/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40a6/12128592/41e3f8272c2b/gr3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40a6/12128592/85fa0dd96e8b/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40a6/12128592/f71141169b29/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40a6/12128592/41e3f8272c2b/gr3.jpg

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