Raising Autistic Children in Mainland China: A Qualitative Study of Parental Experiences and Challenges.

PURPOSE

Parenting children with autism presents unique challenges globally, particularly in China, where cultural factors and an underdeveloped service system can add complexity. This study aimed to explore the parenting experience and challenges of parents raising an autistic child in mainland China.

METHODS

A qualitative descriptive design using individual semi-structured interviews. Using purposive sampling, participants were recruited in mainland China from April to July 2023. Interview data were transcribed verbatim and analyzed using thematic analysis.

RESULTS

Twenty-five Chinese parents (nineteen mothers and six fathers) of autistic children were interviewed. Four themes emerged: (1) diminished quality of life due to the caregiving role; (2) fears and worries regarding children's development; (3) experiences of isolation and loneliness in the caregiving journey; and (4) parental behaviors and their impact on child development.

CONCLUSION

The findings suggest that effective support for individuals with autism extends beyond individual-level interventions, necessitating the integration of family care and robust community support systems. Cultivating autism-friendly communities - where understanding, acceptance, and resources are readily available - is crucial for a more inclusive and supportive environment that addresses cultural stigma, empowers caregivers, and ensures access to appropriate services.