Suppr超能文献

爱尔兰父母养育自闭症孩子的经历:一项定性主题分析。

Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis.

作者信息

Whelan Sally, Caulfield Niall, O'Doherty Sinéad, Mannion Arlene, Leader Geraldine

机构信息

University of Galway, Ireland.

出版信息

Autism. 2025 Feb;29(2):395-407. doi: 10.1177/13623613241277040. Epub 2024 Sep 12.

Abstract

Parenting an autistic child can be a challenging experience. Parents of autistic children often require social and professional support to cope with the various stresses they encounter and to ensure their children achieve their optimal potential. Recently, the way professional supports are organised in Ireland has changed. Very little previous recent research has investigated parents' experiences of raising an autistic child in Ireland. This study interviewed six parents asking them about their challenges, stress levels, coping strategies and their perceptions regarding professional support services. The data from these interviews were organised into themes. A major finding was that parents felt the healthcare system was failing to provide help for their children, and that support services in Ireland can cause more parental distress than dealing with their child's difficulties. Other causes of parental stress included the child's behaviours that they found challenging, stigma, a lack of awareness about autism and isolation. This study shows that both autistic children and their parents are at increased risk of developing mental health problems due to a flawed healthcare system that requires improvement urgently.

摘要

养育一名自闭症儿童可能是一段充满挑战的经历。自闭症儿童的父母通常需要社会和专业支持来应对他们遇到的各种压力,并确保他们的孩子发挥出最大潜力。最近,爱尔兰专业支持的组织方式发生了变化。此前很少有近期研究调查过爱尔兰父母养育自闭症儿童的经历。这项研究采访了六位家长,询问他们面临的挑战、压力水平、应对策略以及他们对专业支持服务的看法。这些访谈的数据被整理成了主题。一个主要发现是,家长们觉得医疗保健系统未能为他们的孩子提供帮助,而且爱尔兰的支持服务给家长带来的困扰比应对孩子的困难还要多。家长压力的其他原因包括他们觉得具有挑战性的孩子行为、污名化、对自闭症缺乏认识以及孤立感。这项研究表明,由于存在缺陷且急需改进的医疗保健系统,自闭症儿童及其父母患心理健康问题的风险都在增加。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/82d4/11816460/7d0c85ae9593/10.1177_13623613241277040-fig1.jpg

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验