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照顾自闭症谱系障碍儿童:一项隐喻研究。

Caring for A Child with Autism Spectrum Disorder: A Metaphor Study.

作者信息

Uncu Betul, Gokcek Ayse Irem, Aras Nehir

机构信息

Department of Midwifery, Health Sciences Faculty, Istanbul University-Cerrahpaşa, Istanbul, Türkiye.

Department of Midwifery, Health Sciences Faculty, Istinye University, İstanbul, Türkiye.

出版信息

Matern Child Health J. 2025 Jun 4. doi: 10.1007/s10995-025-04114-6.

Abstract

OBJECTIVE

It aims to explore the language used by women about their experiences of caring for their child with autism spectrum disorder through metaphor, and to provide a valuable source of insight for midwives and other clinicians.

METHODOLOGY

The study was a prospective qualitative study with a phenomenological approach based on semi-structured, individual and in-depth interviews and observations of the participants. Data saturation was achieved after 11 participants were interviewed. Data were collected in a private clinic between January and May 2024.

RESULTS

This metaphor analysis revealed ten metaphors that mothers used to describe their experience of caring for their child with an autistic spectrum disorder. These metaphors were described as a treasure, a maze, a boat trip, a tangled knot, a newly discovered planet, a late bearing tree, a mountaintop, a new day, an alien and a newly sprouted flower.

CONCLUSIONS

In conclusion, paying attention to the metaphors that women with children on the autistic spectrum use to describe their caring situation can provide midwives and other clinicians with rich insights into understanding women.

摘要

目的

旨在通过隐喻探索女性描述其照顾自闭症谱系障碍患儿经历时所使用的语言,并为助产士和其他临床医生提供有价值的见解来源。

方法

该研究是一项前瞻性定性研究,采用基于半结构化、个体深入访谈及对参与者观察的现象学方法。在对11名参与者进行访谈后实现了数据饱和。数据于2024年1月至5月在一家私人诊所收集。

结果

该隐喻分析揭示了母亲们用来描述其照顾自闭症谱系障碍患儿经历的十个隐喻。这些隐喻被描述为一件珍宝、一座迷宫、一次乘船旅行、一个纠结的结、一颗新发现的行星、一棵晚结果的树、一座山顶、新的一天、一个外星人以及一朵新绽放的花。

结论

总之,关注自闭症谱系患儿母亲用来描述其照顾状况的隐喻,可为助产士和其他临床医生深入了解女性提供丰富的见解。

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