Stewart Alexandra, Hoeve E Van, Mustafa A, Lefton-Greif M A, Ridout D, Smith C H
Department of Language and Cognition, University College London, London, UK.
Department of Speech and Language Therapy, Great Ormond Street Hospital, London, UK.
Dysphagia. 2025 Jun 5. doi: 10.1007/s00455-025-10845-z.
The feeding swallowing impact survey (FS-IS) is an 18-question, 3 subscale, validated tool measuring parent/caregiver impact of children's eating, drinking and swallowing difficulties. This study aimed to establish reference values from parents of children without known or suspected paediatric feeding disorder for the FS-IS. Parents of children aged 6 months-11 years were invited to complete an anonymous, online questionnaire. The Pedi-EAT-10 was used to screen for pediatric feeding disorder. For the FS-IS average and cumulative scores were calculated for the whole scale and subscales. Percentile rankings were calculated for the cumulative whole scale score. The relationship between variables was explored using Spearman's correlation and 75th centile quantile regression. The final sample consisted of 904 parents. Median (IQR) whole scale score was 1.11 (1.06, 1.22), from a possible range of 1-5.. Percentile rank scores were: 5th = 18, 25th = 19, 50th percentile = 20, 75th = 22 and 95th = 29, from a possible range of 18-70. Parent perception of a feeding difficulty was the factor associated with greatest score increase. These data provide UK reference data for the FS-IS, facilitating its use in the evaluation of parental impact of feeding difficulties, a key component of holistic, family-centred care. Feeding-related QOL is largely unaffected in caregivers of children without a diagnosed or suspected pediatric feeding disorder.
喂养吞咽影响调查（FS-IS）是一个包含18个问题、3个分量表的经过验证的工具，用于测量儿童进食、饮水和吞咽困难对父母/照顾者的影响。本研究旨在为FS-IS建立来自无已知或疑似儿科喂养障碍儿童的父母的参考值。邀请6个月至11岁儿童的父母完成一份匿名在线问卷。使用儿科进食问卷（Pedi-EAT-10）筛查儿科喂养障碍。计算FS-IS整个量表和分量表的平均分和累积得分。计算累积全量表得分的百分位数排名。使用Spearman相关性和第75百分位数分位数回归探索变量之间的关系。最终样本包括904名父母。全量表得分的中位数（四分位距）为1.11（1.06，1.22），可能范围为1至5。百分位排名得分分别为：第5百分位=18，第25百分位=19，第50百分位=20，第75百分位=22，第95百分位=29，可能范围为18至70。父母对喂养困难的认知是与得分增加幅度最大相关的因素。这些数据为FS-IS提供了英国参考数据，便于其用于评估喂养困难对父母的影响，这是以家庭为中心的整体护理的关键组成部分。在未诊断或疑似患有儿科喂养障碍的儿童的照顾者中，与喂养相关的生活质量在很大程度上未受影响。
